A large interview study, evolved from the clinical research project SYMPA-ID (Systemic Methods in Acute Psychiatry for People with Intellectual Disability), focused on adults with cognitive impairment and mental disorder who lived in a residential home and were in need of intensive psychiatric treatment. With the objective of analysing the interactions between the patients and their carers as well as the cooperations within the multi-carer system, both patients with mild to severe ID and their carers (relatives, legal guardians, professional carers of residential group homes as well as in- and outpatient psychiatric services) were surveyed several times between 2015 and 2018. Qualitative Data Analysis of 188 interviews with 67 participants resulted in a collection of 43 strategies concerning both attitudes and activities to prevent or cope with aggressive incidents. The results reached high interrater-reliability. Many of the strategies can be linked to systemic theory and practice and underline the importance of a (multi-)systemic approach. The tool-box was called SMILE: Systemic-inspired Methods for the Interaction and SoLution of Escalative Patterns.

Download full-text PDF

Source
http://dx.doi.org/10.1055/a-1200-6205DOI Listing

Publication Analysis

Top Keywords

intellectual disability
8
mental disorder
8
[adults intellectual
4
disability mental
4
disorder challenging
4
challenging behaviour
4
behaviour system-related
4
system-related strategies
4
strategies coping
4
coping aggressive
4

Similar Publications

Simpson-Golabi-Behmel syndrome type 1 in a neonate with central hepatoblastoma.

BMJ Case Rep

January 2025

Division of Neonatology, Kasturba Medical College Manipal, Manipal Academy of Higher Education, Manipal, Karnataka, India.

We report a neonate evaluated for hepatomegaly during hospitalisation and was diagnosed to have hepatoblastoma, an uncommon childhood malignancy. The presence of dysmorphism, macrosomia and congenital heart defect led to the suspicion of congenital overgrowth conditions. The genetic evaluation revealed a pathogenic variant, conclusive of Simpson-Golabi-Behmel syndrome type 1 (SGBS1).

View Article and Find Full Text PDF

Cell fate decisions during cortical development sculpt the identity of long-range connections that subserve complex behaviors. These decisions are largely dictated by mutually exclusive transcription factors, including CTIP2/Bcl11b for subcerebral projection neurons and BRN1/Pou3f3 for intra-telencephalic projection neurons. We have recently reported that the balance of cortical CTIP2-expressing neurons is altered in a mouse model of DDX3X syndrome, a female-biased neurodevelopmental disorder associated with intellectual disability, autism spectrum disorder, and significant motor challenges.

View Article and Find Full Text PDF

Myoclonic reflex and non-reflex seizures in a female child with Coffin-Lowry syndrome: Clinical vignette.

Epileptic Disord

January 2025

Child Neurology and Psychiatry Unit, Dipartimento materno-infantile, Presidio Ospedaliero Santa Maria Nuova, AUSL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.

View Article and Find Full Text PDF

SYNGAP1 is a Ras GTPase-activating protein that plays a crucial role during brain development and in synaptic plasticity. Sporadic heterozygous mutations in SYNGAP1 affect social and emotional behaviour observed in intellectual disability (ID) and autism spectrum disorder (ASD). Although neurophysiological deficits have been extensively studied, the epigenetic landscape of SYNGAP1 mutation-mediated intellectual disability is unexplored.

View Article and Find Full Text PDF

This article identifies and offers a response to several problems that affect the quality of both clinical education and health care services. These matters are: that in clinical training and practice, health, as lived by patients (persons), is not properly considered, and is equated reductively with treating diseases/disorders; that health is seen through disease, and as restricted to a single model defined by an organism's meeting (or being returned to) biochemical or functional standards; that intellectual assumptions instilled in schools of Medicine and Psychology about realities pertaining to healthcare determine an understanding of chronic illness or life with chronic challenges focused on impairment and suffering, and not on the fuller experience of living with illness, disability or neuropsychological challenges that patients have as persons; that arts-based education reflects the same focus in understanding 'illness', and thus neglects giving attention to the creation of personal health states of those living with challenging or debilitating long-term conditions; that, consequently, the arts are instrumentalized to serve these predefined educational purposes, rather than allowed to inform clinical training through that which is intrinsic or more specific to them. As a way out of these limitations and as an illustration of how things could be done differently, Vincent Van Gogh's paintings of the Sunflowers are used as visual inspiration for how we could change the way we see, and construct new mental representations of 'health', 'chronic illness' or 'chronic challenges', 'patient as person' or even 'person as non-patient', 'the clinician's role' and 'the identity of clinical practice'.

View Article and Find Full Text PDF

Want AI Summaries of new PubMed Abstracts delivered to your In-box?

Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!