The number of children with life-threatening and life-limiting conditions is increasing, requiring an individualized approach and additional supportive care. The American Academy of Pediatrics has called for pediatric palliative care to be available to all children who would benefit. High quality pediatric palliative care is essential for these children. Collaborative team-based methods focused on improving quality of life have shown to improve outcomes in physical, emotional, and cognitive domains. Palliative care involvement at the time of diagnosis rather than just at the end of life has moved coordinated care upstream. All clinicians can and should deliver palliative care. The Joint Commission recommends having patient-centered palliative care services available for children, and the Centers for Medicare and Medicaid Services is reimbursing clinicians for this coordinated care. This article details how all pediatric clinicians can positively influence the care of seriously ill children by incorporating palliative care principles into their daily care, resulting in better outcomes for their patients and families.
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http://dx.doi.org/10.1016/j.cppeds.2020.100814 | DOI Listing |
Appl Nurs Res
April 2025
Training Office, IRCCS Policlinico San Donato, Milano, Italy.
Background: Self-care is essential for patient with chronic conditions such as heart failure. Self-care facilitates adaptation in patients with a Left Ventricular Assist Device (LVAD), improving their outcomes and preventing complications. Currently, no studies provide an overview of self-care in people with LVADs.
View Article and Find Full Text PDFAppl Nurs Res
April 2025
Institute of Community Health Care, College of Nursing, National Yang Ming Chiao Tung University, Taipei, Taiwan; Cicely Saunders Institute, Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, King's College London, London, United Kingdom. Electronic address:
Background: Discussing advance care planning (ACP) preferences for nasogastric tube (NG) insertion remains challenging among older adults. Multimedia decision-making aids have demonstrated potential to enhance understanding and support informed decision-making.
Aim: To evaluate the effectiveness of the EATING program (multimedia decision-making aids + traditional educational module) compared to usual care (traditional educational module alone) in improving ACP readiness on NG insertion for community older adults with chronic illness.
J Am Med Dir Assoc
March 2025
Bruyère Research Institute, Ottawa, Ontario, Canada; ICES Uottawa, The Ottawa Hospital Research Institute, Ottawa, Ontario, Canada; Clinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, Ontario, Canada; Department of Family Medicine, University of Ottawa, Ottawa, Ontario, Canada. Electronic address:
Objectives: Patients from ethnically minoritized communities often face disparities in health care due to language and cultural barriers. This study aimed to compare health care use and end-of-life outcomes between Chinese-speaking residents living in language-concordant and language-discordant long-term care (LTC) homes.
Design: Retrospective cohort study.
Clin Nutr ESPEN
March 2025
St Columba's Hospice Care, Boswall Road, Edinburgh, UK; Edinburgh Cancer Research Centre, University of Edinburgh, Edinburgh, UK.
Background & Aims: The Global Leadership Initiative on Malnutrition (GLIM) criteria have been recommended for the diagnosis of malnutrition. It requires that the patient meets at least one phenotypic criterion and at least one aetiological criterion. For the latter, the patient must either demonstrate reduced food intake or have evidence of systemic inflammation.
View Article and Find Full Text PDFRespir Med
March 2025
Respiratory Research and Rehabilitation Laboratory (Lab3R), School of Health Sciences (ESSUA), University of Aveiro, Aveiro, Portugal; Institute of Biomedicine (iBiMED), University of Aveiro, Aveiro, Portugal. Electronic address:
Aim: To explore the feasibility of integrating palliative care education in pulmonary rehabilitation (PR).
Methods: A mixed-methods feasibility study was conducted in people with chronic respiratory diseases enrolled in 12-weeks outpatient hospital-based PR. A session about palliative care was integrated in the education content.
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