JAMIA Open
Department of Public Health Sciences, University of Virginia School of Medicine, Charlottesville, Virginia, USA.
Published: April 2020
The active involvement of citizen scientists in setting research agendas, partnering with academic investigators to conduct research, analyzing and disseminating results, and implementing learnings from research can improve both processes and outcomes. Adopting a citizen science approach to the practice of precision medicine in clinical care and research will require healthcare providers, researchers, and institutions to address a number of technical, organizational, and citizen scientist collaboration issues. Some changes can be made with relative ease, while others will necessitate cultural shifts, redistribution of power, recommitment to shared goals, and improved communication. This perspective, based on a workshop held at the 2018 AMIA Annual Symposium, identifies current barriers and needed changes to facilitate broad adoption of a citizen science-based approach in healthcare.
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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7309265 | PMC |
http://dx.doi.org/10.1093/jamiaopen/ooz060 | DOI Listing |
Sci Rep
January 2025
Department of Environmental Analytical Chemistry, Helmholtz Centre for Environmental Research (UFZ), 04318, Leipzig, Germany.
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School of Architecture and Urban Planning, Shenzhen University, Guangdong, China. Electronic address:
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Department of Senior Citizen Service Management, National Taichung University of Science and Technology, Taichung 40343, Taiwan.
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View Article and Find Full Text PDFAnimals (Basel)
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Institut de Systématique, Évolution, Biodiversité (ISYEB), Muséum National d'Histoire Naturelle, CNRS, Sorbonne Université, EPHE-PSL, Université des Antilles, 75005 Paris, France.
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