[Coping with life for children with chronic illness: necessary services in the healthcare system].

Background: Children and adolescents with chronic diseases are a very heterogeneous group of patients with age-specific characteristics and a broad spectrum of underlying diseases. These patients require not only good medical care but also comprehensive support in order to achieve the greatest possible participation in social life.

Objective: In this review, the problems faced by children and adolescents with chronic diseases, as well as by their families, and the requirements for the best possible life management, are presented. The framework conditions of the healthcare system and the necessary supplementary social benefits are presented and necessary steps for further development are discussed.

Conclusion: There are numerous services for children and adolescents with chronic diseases, as well as for their families. However due to the often-confusing access paths and a lack of coordination, these services are not seized to the extent necessary. Current efforts to improve coordination of social legislation and developing one-stop services represent a further step towards improving care.