AI Article Synopsis
- ALS causes physical restrictions like loss of speech and motor control, which can be somewhat managed with assistive devices, but swallowing and breathing issues require medical interventions.
- A study found significant differences in satisfaction regarding healthcare financing and provisions between ALS patients in Germany and Poland, despite similar economic impacts of the disease.
- The research involved reviewing the healthcare systems in both countries to identify challenges faced by patients and caregivers in accessing assistive devices and care.
Article Abstract
There are a number of physical restrictions that develop in the course of amyotrophic lateral sclerosis (ALS). While loss of speech and motor control may be partially compensated by the support of assistive devices, swallowing difficulty and respiratory insufficiency require medical interventions (percutaneous endoscopic gastrostomy, noninvasive, and invasive ventilation). Based on the data collected within the NEEDSinALS study, we found major differences in personal satisfaction with the financing, healthcare provision, medical infrastructure, and regulations of German and Polish ALS patients, despite minor differences in economic burden caused by the disease. In order to explain this phenomenon, we thoroughly reviewed the legal basis, structure and organization of the healthcare systems in Germany and Poland to determine the range of obstacles in the everyday lives of patients and their caregivers that are attempting to attain an assistive device or care after the start of medical interventions.
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| http://dx.doi.org/10.1080/21678421.2020.1746345 | DOI Listing |
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