The large majority of coeliacs have a high degree of perceived dietary competence.

Scand J Gastroenterol

Hans Christian Andersen Children's Hospital, Odense University Hospital, Odense, Denmark.

Published: December 2019

The treatment for coeliac disease (CD) is a gluten-free diet (GFD), which impacts the health-related quality of life (HRQoL). The aim of the study was to develop the Gluten-Free Diet Perceived Competence Scale (GFD-PCS): a short and precise CD-specific patient-reported outcome measure. The GFD-PCS was developed from the scales 'Perceived Competence (Maintaining a Healthy Diet)' and 'Perceived Competence for Diabetes'. The scale was then programmed into a web-based questionnaire and distributed together with generic quality of life (WHO-5) and CD-specific HRQoL (CDQL) questionnaires. There were 931 respondents. The 831 who reported 'diagnosed CD' were retained. The average age was 37.6 years ( = 16.5). There was no statistically significant difference between males ( = 5.9,  = 1.6) and females ( = 6.2,  = 1.4) in GFD-PCS score. Respondents younger than 18 years ( = 104) scored lower ( = 5.8,  = 1.4) than adults ( = 6.2,  = 1.4). The psychometric properties of the GFD-PCS showed excellent internal reliability (α = .96) and satisfied construct and criterion validity. The GFD-PCS measures patient-perceived dietary competence for maintaining a GFD. The scale is psychometrically robust and provides a useful tool in assessing patients' difficulties with a GFD.

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http://dx.doi.org/10.1080/00365521.2019.1690039DOI Listing

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