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Creating Clinical Cohorts: Challenges Encountered in Two Canadian Provinces. | LitMetric

AI Article Synopsis

  • In 2013, the LHIV Innovation team created clinical cohorts of people living with HIV in Manitoba and Newfoundland and Labrador, linking them to provincial health data for research.
  • This data access allowed researchers to conduct cross-provincial studies, enhance national discussions on HIV healthcare, and offer evidence-based recommendations.
  • The text emphasizes the need for stable funding to maintain these cohorts and advocates for a cross-jurisdictional approach to ensure continuous data collection and analysis for better national health policies.

Article Abstract

In 2013, the Living with HIV (LHIV) Innovation team established clinical cohorts of people living with HIV in Manitoba and Newfoundland and Labrador, and they linked the data to provincial health administrative databases. Access to these data enabled researchers to conduct studies across provincial borders; contribute to a national dialogue on HIV health system performance; and give recommendations for evidence-based healthcare, health policy and public health. However, research funding is episodic; maintaining cohorts requires stable funding. We support the establishment of a cross-jurisdictional approach to facilitate streamlined data collection and linkage without interruption and to allow for meaningful analysis in order to inform national policies.

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Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7008696PMC
http://dx.doi.org/10.12927/hcpol.2019.25942DOI Listing

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