The present study investigated factors associated with parental grief reaction (PGR) following pediatric acquired brain injury (ABI), and compared PGR to the one exhibited following child death. Fifty-seven parents of 51 children (aged 3-18) whose ABI occurred 1-14 years before participation, completed the multi-scale Two-Track Bereavement Questionnaire; a socio-demographic questionnaire; and a scale assessing perceived behavioural changes in the child. Results from regression analysis indicated that time since injury had no impact on parents' grief other than having an adverse impact on their overall coping and functioning; A higher amount of weekly caring hours predicted only a greater traumatic perception of the loss; Older children's ages but mostly greater parental-perceived behavioural changes, predicted greater PGR on most scales. PGR was compared with the pre-existing data of bereaved parents who completed the same grief questionnaire. Although grief response patterns and intensity were similar in both groups, significant differences were found on scales assessing the continuing bond with the child: relational active grief, close and positive relationship, and conflictual relationship. Our findings indicate that parental grief is multi-dimensional following pediatric ABI and illuminate the interplay between elements characterizing parents' nonfinite vs. finite loss experience.
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http://dx.doi.org/10.1080/09602011.2019.1668280 | DOI Listing |
BMC Pregnancy Childbirth
January 2025
Department of Women's and Children's Health, Uppsala University, Uppsala, 751 85, Sweden.
Background: Stillbirth occurs at a rate of 3.0 per thousand in Sweden. However, few studies have focused on the initial experiences of parents facing a stillbirth.
View Article and Find Full Text PDFJ Palliat Med
December 2024
Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania, USA.
Hospital-based supports for families following the death of a child are rare. Virtual interventions may address key barriers to providing bereavement care, but little is known about their acceptability, feasibility, and efficacy. Our hospital's palliative care program offered a six-week closed virtual support group for bereaved parents five times between 2021 and 2024.
View Article and Find Full Text PDFEpilepsy Behav
December 2024
Department of Neurology, Drammen Hospital, Vestre Viken Hospital Trust, Dronninggata 28, 3004 Drammen, Norway. Electronic address:
Background: Developmental and epileptic encephalopathies (DEEs) are a group of severe and heterogeneous epilepsies. Most of the affected patients have treatment refractory seizures, intellectual disability (ID), and multiple comorbidities. The condition has a negative impact on quality of life, both for the patients and their families.
View Article and Find Full Text PDFJMIR Res Protoc
December 2024
Department of Social Work, Southern Connecticut State University, New Haven, CT, United States.
Background: HIV risk behavior in women who use drugs is related to myriad psychosocial issues, including incarceration. The experience of incarceration elevates women's HIV risk by disrupting social networks, housing, employment, and access to health care. During the COVID-19 pandemic, changes in criminal-legal practices resulted in decreased incarceration, especially among women.
View Article and Find Full Text PDFDev Psychopathol
December 2024
Department of Psychology, Arizona State University, Tempe, AZ, USA.
This study reports on the description of children's distinct trajectories of intrusive grief, baseline predictors of grief trajectories, and the association of grief trajectories with mental health, substantive abuse and disordered grief six and fifteen years following baseline assessment. The study uses data on 244 parentally-bereaved children ages 8-16 at baseline. Four distinct trajectories were identified using Growth Mixture Modeling over four waves of assessment across 6 years.
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