To describe health-related quality of life (HRQoL) outcomes of school-going paediatric cochlear implant (CI) recipients in a South African cohort from the perspectives of parents. Parents of school-going CI recipients completed the Children with Cochlear Implants: Parental Perspectives (CCIPP) CI-specific HRQoL questionnaire. The effect of different demographic variables on HRQoL outcomes was also determined. The study sample included 54 parents of school-going (mean age = 12.2 years; SD = 3.6; range = 6.6-18.3 years) CI recipients with at least six months CI experience. Children's communication and general functioning with a CI received the most positive parental ratings. Among a number of confirmed statistically significant ( < 0.05) associations between HRQoL outcomes and demographic variables, pre-lingual onset of deafness was linked to better HRQoL in terms of general functioning and well-being. While shorter duration of deafness and unilateral implantation were associated with higher parental ratings for self-reliance and well-being respectively, longer duration of CI use was linked to improved HRQoL outcomes in terms of general functioning. Parents assigned positive ratings to their child's HRQoL. This exploration of children's HRQoL related to their CIs contributes to evidence-based paediatric CI services that promote optimal psychosocial outcomes.
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http://dx.doi.org/10.1080/14992027.2019.1661531 | DOI Listing |
Med Care
January 2025
John Ware Research Group (JWRG), Watertown, MA.
Background: Comprehensive health-related quality of life (QOL) assessment under severe respondent burden constraints requires improved single-item scales for frequently surveyed domains. This article documents how new single-item-per-domain (SIPD) QOL General (QGEN-8) measures were constructed for domains common to SF-36 and results from the first psychometric tests comparing scores for the new measure in relation to those for the SF-36 profile and summary components.
Research Design: Online NORC surveys of adults, ages 19-93 (mean=52 y) representing the US population in 2020 (N=1648) included QGEN-8 and SF-36 items measuring physical (PF), social (SF), role physical (RP) and role emotional (RE) functioning and feelings of bodily pain (BP), vitality (VT), and mental health (MH).
Pediatr Obes
January 2025
Department of Pediatrics, University of Toronto, Toronto, Ontario, Canada.
Objective: Conduct a systematic review and meta-analysis of randomized controlled trials (RCTs) of behavioural and psychological interventions for managing paediatric obesity.
Methods: Eligible studies, published between 1985 and 2022, included 0 to 18 year olds with outcomes reported ≥3 months post-baseline, including patient-reported outcome measures (PROMs), cardiometabolic and anthropometric outcomes, and adverse events (AEs). We pooled data using a random effects model and assessed certainty of evidence (CoE) related to minimally important difference estimates for outcomes using GRADE.
Ann Surg Treat Res
January 2025
Division of Pediatric Surgery, Department of Surgery, Seoul St. Mary's Hospital, College of Medicine, The Catholic University of Korea, Seoul, Korea.
Purpose: We aimed to evaluate health-related quality of life (HRQoL) in intestinal failure (IF) patients after different modes of intestinal rehabilitation.
Methods: HRQoL was assessed using the generic 36-item Short Form Survey (SF-36, ver. 2) and visual analogue scale (VAS) in 6 different areas: diet, sleep, gastrointestinal (GI) symptoms, diarrhea, musculoskeletal pain, and other symptoms.
JSES Int
November 2024
Department of Population Health Sciences, Duke University, Durham, NC, USA.
Background: Identification of high-impact chronic pain (HICP) among patients receiving total shoulder arthroplasty (TSA) may allow for the design and implementation of tailored pain interventions to address the negative impact on postoperative outcomes and quality of life. This analysis sought to determine if Patient-Reported Outcome Measurement Information System (PROMIS) measures could be used to estimate HICP status following TSA.
Methods: This was a secondary analysis of a cohort of patients (n = 227) who received a TSA at a single, academic medical center, of whom 25 (11.
Cureus
December 2024
Internal Medicine, Al Rayan College, Madina, SAU.
Background Ulcerative colitis (UC) is a common chronic disease. Perceived stress is one of the risk factors that stimulate UC activity. Long-term clinical suffering negatively alters the health-related quality of life (HRQOL).
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