Objective: This study examines the preferences of patients with metastatic cancer regarding notification of imaging results, as well as distress surrounding the process.
Methods: On imaging day, preferences for notification, expectations of results, health literacy, and social support were measured. After receiving results, patients reported on actual delivery methods. At both times, patients were screened for overall distress, anxiety, and depression.
Results: The majority of patients preferred notification within 2 days and during a face-to-face visit with their oncologist. Although levels of distress, anxiety, and depression were low, patients with higher anxiety, depression, and social isolation had higher distress. There was no correlation between absolute distress levels and agreement between notification preferences and actual delivery methods. Receiving results from a preferred provider was associated with a decrease in distress from imaging day to follow-up. Face-to-face delivery of results was more important to people with lower health literacy.
Conclusions: While distress regarding the receipt of results was low, it was higher for some groups of patients. Attending to the preferences of these subgroups may help to minimize distress.
Practice Implications: Receiving results from preferred personnel and diminishing patients' sense of social isolation might provide psychological benefit during the period surrounding imaging.
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http://dx.doi.org/10.1016/j.pec.2019.08.032 | DOI Listing |
Sex Health
January 2025
Burnet Institute, Melbourne, Vic, Australia; and Melbourne School of Population and Global Health, The University of Melbourne, Melbourne, Vic, Australia; and Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, Vic, Australia.
Background Partner notification is an important step in the control of sexually transmissible infections (STIs). STIs remain at high rates among young people and can have serious reproductive consequences if left untreated. This study aimed to determine the preferences and motivations for partner notification among young people in Australia.
View Article and Find Full Text PDFKans J Med
September 2024
University of Kansas School of Medicine-Wichita, Wichita, KS.
Introduction: Communication of breast biopsy results varies and does not always meet patient expectations. This study aimed to determine how patients previously diagnosed with breast cancer preferred to receive their biopsy results, including preferences for communication methods, the type of medical professional delivering the results, and wait time. Additionally, we evaluated how health literacy might affect these preferences.
View Article and Find Full Text PDFAm J Manag Care
December 2024
Institute for Accountable Care, 2001 L St NW, Ste 500, Washington, DC 20036. Email:
Objectives: To describe the prevalence and characteristics of preferred skilled nursing facility (SNF) networks established by Medicare accountable care organizations (ACOs).
Study Design: Cross-sectional analysis of a 2019 Medicare ACO survey.
Methods: We analyzed surveys from 138 Medicare ACOs to assess preferred SNF network prevalence, characteristics, and challenges.
Genet Med
December 2024
Division of Genetics and Genomics, Boston Children's Hospital, Boston, MA; The Manton Center for Orphan Disease Research, Boston Children's Hospital, Boston, MA; Harvard Medical School, Boston, MA.
Purpose: Genomic sequencing of newborns (NBSeq) can initiate disease surveillance and therapy for children, and may identify at-risk relatives through reverse cascade testing. We explored genetic risk communication and reverse cascade testing among families of newborns who underwent exome sequencing and had a risk for autosomal dominant disease identified.
Methods: We conducted semi-structured interviews with parents of newborns enrolled in the BabySeq Project who had a pathogenic or likely-pathogenic (P/LP) variant associated with an autosomal dominant (AD) childhood- and/or adult-onset disease returned.
Patient Educ Couns
December 2024
Wiser Healthcare, Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia; The Daffodil Centre, The University of Sydney, A Joint Venture with Cancer Council NSW, Sydney, New South Wales, Australia. Electronic address:
Objectives: Previous research suggests a one-size-fits-all approach to breast density notification may disadvantage culturally and linguistically diverse (CALD) women. This study aimed to qualitatively explore CALD women's understanding and views of breast density, attitudes towards health services access, acceptability of notification and preferences for breast density communication ahead of population-based notification in Australia.
Methods: Online focus groups were conducted with CALD women of breast screening age (40-74 years) who spoke one of the five languages with the lowest English proficiency in Australia (Korean, Mandarin, Cantonese, Vietnamese and Arabic).
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