Background: As individuals with intellectual and developmental disabilities (IDD) grow older, siblings are likely to become caregivers for their brothers and sisters with IDD. Thus, it is important to identify the correlates of sibling caregiving to facilitate transitions to caregiving roles.
Method: This study involved the secondary analysis of a national data set of 429 adult siblings of individuals with IDD.
Results: Current sibling caregiving was positively correlated with sibling relationship quality, sibling advocacy and future planning, maladaptive behaviours of individuals with IDD, and family size. Current sibling caregiving was negatively correlated with parent caregiving abilities and functional abilities of individuals with IDD. Further, among siblings who provided care, the level and nature of sibling caregiving were negatively correlated with parent caregiving abilities.
Conclusions: The results identify the correlates of current caregiving among siblings of individuals with IDD. More research is needed to understand current sibling caregiving.
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http://dx.doi.org/10.1111/jar.12644 | DOI Listing |
BMC Public Health
January 2025
Division of General Medicine, University of Michigan Medical School, Ann Arbor, USA.
Background: Modeling studies suggest that hundreds of thousands of U.S. children have lost caregivers since the COVID-19 pandemic began.
View Article and Find Full Text PDFLife (Basel)
January 2025
Department of Rehabilitation Sciences, Princess Nourah Bint Abdulrahman University, Riyadh 11671, Saudi Arabia.
Background: The COVID-19 pandemic may have had long-lasting detrimental effects on children's physical health. Previous studies have shown that children's participation in physical activity (PA) declined during the pandemic. This study examined the effect of the COVID-19 pandemic on PA type selection and the influence of gender, number of siblings, residence type, and caregiver education level on PA.
View Article and Find Full Text PDFLGBTQ Fam
June 2024
Division of Adolescent/Young Adult Medicine, Boston Children's Hospital, Department of Pediatrics, Harvard Medical School, Department of Social and Behavioral Sciences, Harvard T. H. Chan School of Public Health, 300 Longwood Ave, Boston, MA 02115.
Few studies have focused on transgender and nonbinary youths' (TNBY) gender development and even less well understood is how family members understand TNBY identity. The current study investigated: a) how TNBY describe their gender identity over time, and b) how family members understand TNBY gender identity over time. The baseline sample included 96 members of 33 families (33 TNBY, 48 cisgender caregivers, 15 siblings) from the United States; 30 families continued after Wave 1.
View Article and Find Full Text PDFPediatr Res
January 2025
Thompson Center for Autism and Neurodevelopment, University of Missouri-Columbia, Columbia, MO, USA.
Background: Identification of prodromal indicators of autism in infancy has the potential to identify behaviors relevant to early autism screening.
Methods: We report on data from a prospective general population birth cohort with maternal reported measures at 9 and 12 months: the Survey of Well-Being of Young Children (SWYC; general developmental surveillance) and the First Year Inventory-Lite v3.1b (FYI-Lite; autism specific parent report research tool).
Front Pediatr
January 2025
IRCCS Fondazione Don Carlo Gnocchi, Milano, Italy.
Background: It has been widely demonstrated that siblings of children with autism spectrum disorder (ASD) have an increased risk of abnormal developmental trajectories. In response to this, early recognition protocols have been developed worldwide, aiming to promote early interventions that can positively impact the neurodevelopment of this population. This paper presents the protocol of a controlled trial: ERI-SIBS (Early Recognition and Intervention in SIBlingS at High Risk for Neurodevelopment Disorders) is an innovative and ecological early recognition and intervention program designed specifically for siblings of children with ASD.
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