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French-style genetics v. 2.0: The "e-CohortE" project. | LitMetric

AI Article Synopsis

  • In the digital age, genetics cohorts have evolved from merely identifying disease causes to generating vast data for medical and commercial purposes, exemplified by companies like 23andMe.
  • French law currently restricts foreign genetic companies from operating in the country while preventing similar entities from being established domestically.
  • A proposed solution, called "e-CohortE," aims to create a French version of genetic cohorts that aligns with national healthcare needs without requiring legal changes.

Article Abstract

In the digital age, a genetics cohort has become much more than a simple means of determining the cause of a disease. Two-sided markets, of which 23andMe, Ancestry DNA and MyHeritage are the best known, have showed this perfectly over the last few years: a cohort has become a means of producing massive amounts of data for medical, scientific and commercial exploitation, and for genetic use in particular. French law does not currently allow these foreign private companies to develop on French national territory and also forbids the creation of similar entities in France. However, at least in theory, this same law does not preclude the creation of new types of cohorts in France inspired by the success of two-sided markets but retaining features specific to the French healthcare management system. We propose an optimal solution for France, for genomic studies associated with multi-subject questionnaires, still purely theoretical for the moment: the development, with no need for any change in the law, of France's own version of "Genetics v.2.0": "e-CohortE."

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Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6851966PMC
http://dx.doi.org/10.1111/cge.13595DOI Listing

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