Background: Adolescents and young adults (AYA) with special health care needs are living into adulthood, as improvements in care increase the likelihood of survival. Fewer than half have the resources needed to transition to adult care (McPheeters et al., 2014). A portable medical summary is a concise document summarizing current medical information about a patient that can be used across healthcare systems as AYA transition to adult care. Though a consensus statement recommending the use of such a summary has existed for over a decade (American Academy of Pediatrics (AAP), American Academy of Family Physicians (AAFP), American College of Physicians-American Society of Internal Medicine (ACP-ASIM), 2002), little progress had been made in the development of a portable medical summary.
Methods: The Institute for Healthcare Improvement (IHI) Model was used to implement a process to provide a portable medical summary to AYAs with medically complex conditions (Institute for Healthcare Improvement, 2017).
Interventions: The tool was developed using the electronic health record and shared with families. Feedback from care providers and families led to modifications to improve its usefulness and feasibility. Implementation of the process was tested for four months.
Results: The number of AYA, ages 16-24, who were being seen for well care or chronic care management visits, and had a portable medical summary initiated, had increased from 0% to 100%.
Conclusions: The use of a PMS that summarizes medical care received in the pediatric system, is one tool that may be used to bridge the gap between pediatric and adult care.
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