In Finland, as well as all over the globe, great weight is put on the possibilities of large data collections and 'big data' for generating economic growth, enhancing medical research, and boosting health and wellbeing in totally new ways. This massive data gathering and usage is justified by the moral principle of improving health. The imperative of health thus legitimizes data collection, new infrastructures and innovation policy. It is also supported by the rhetoric of health promotion. New arrangements in health research and innovations in the health sector are justified, as they produce health, while the moral principle of health also obligates individual persons to pursue healthy lifestyles and become healthy citizens. I examine how, in this context of Finnish data-driven medicine, arguments related to privacy and autonomy become silenced when contrasted with the moral principle of health.
Download full-text PDF |
Source |
|---|---|
| http://dx.doi.org/10.1017/S0963180119000057 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
The Value and Importance of a Professional Ethical Code for Medicines Development: IFAPP International Ethics Framework.
Pharmaceut Med
January 2025
Pharmaceutical Medicine, Dover Heights, Sydney, NSW, Australia.
Pharmaceutical medicine professionals have to face many ethical problems during the entire life span of new medicines extending from animal studies to broad clinical practice. The primary aim of the general ethical principles governing research conducted in humans is to diminish the physical and psychological burdens of the participants in human drug studies but overlooks many additional social and ethical problems faced by medicine developers. These arise mainly at the interface connecting the profit-oriented pharmaceutical industry and the healthcare-centered medical profession cooperating in medicines development.
View Article and Find Full Text PDFSupporting social justice through equity-based actions for a sustainable future in animal genetics (at the 39th International Society for Animal Genetics Conference).
Anim Genet
February 2025
College of Agriculture and Environmental Sciences, University of South Africa Science, Johannesburg, South Africa.
The 39th International Society for Animal Genetics conference (ISAG) was held for the first time in Africa under the theme 'Animal genetics for a sustainable future' in 2023. The conference convened scientists, policy makers, industry professionals, and students from interdisciplinary fields to share and discuss the latest developments in the space of animal genetics. Since its inception as a society, ISAG has sought to provide a platform advocating for a just and equitable future in animal genetics.
View Article and Find Full Text PDFExperimental paradigm to test the effects of providing social support: study protocol of the PROSPECT trial (Study 2).
BMC Psychol
January 2025
Department of Psychology, MSB Medical School Berlin, Rüdesheimer Str. 50, Berlin, 14197, Germany.
Background: A growing body of research suggests that the provision of social support can have benefits not only for the recipients but also for the provider. Although initial evidence for affective, self-evaluative and physiological outcomes has been established, the beneficial effects of support provision do not occur consistently across all support interactions, and some interactions may even have detrimental effects on providers. The aim of our experimental paradigm is to enable researchers to test the conditions under which the provision of social support to dyadic partners affects affective, self-evaluative, physiological, and relationship outcomes for the provider.
View Article and Find Full Text PDFTeaching healthy lifestyle behaviors based on philosophical thinking to preschool children: a randomized controlled trial.
BMC Public Health
January 2025
Research Center for Health Sciences, Institute of Health, Department of Gerontology, School of Health, Shiraz University of Medical Sciences, Shiraz, Iran.
Background: The promotion of a healthy lifestyle among preschool children is essential for establishing their future habits. Evidence indicates that the incorporation of philosophical thinking-encompassing critical, creative, and compassionate thought-can significantly contribute to children's cognitive and moral growth, thereby positively affecting their health-related decisions. This research evaluated the effects of imparting healthy lifestyle practices through philosophical thinking to preschool children.
View Article and Find Full Text PDFRural and remote health care: the case for spatial justice.
Rural Remote Health
January 2025
School of Health Sciences, Western Sydney University, Campbelltown, NSW 2560, Australia.
Almost universally, people living in rural and remote places die younger, poorer, and sicker than urban-dwelling citizens of the same country. Despite clear need, health services are commonly less available, and more costly and challenging to access, for rural and remote people. Rural geography is commonly cited as a reason for these disparities, that is, rural people are said to live in places too distant, too underpopulated, and too difficult to access.
View Article and Find Full Text PDFWant AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!