Reaching a certain age places one in a particular landscape in which dementia may be part of the scenery. This costly public health problem is personally devastating not only for dementia sufferers but for their surrounding interpersonal circle, which is not limited to immediate family. Indeed, friends often become the family you choose; their issues become, at some level, shared issues. In this setting the impulse of a life scientist to offer knowledgeable assistance to a friend fits naturally into a cornerstone of culture in present-day Hawai'i for mobilizing relevant aid from all corners. This model, called "forming a ", comprises a network of not only formal professional relationships but potentially even more importantly, the informal ones: friendships, serendipitous contacts, someone who knows someone who knows someone, the essence of connectedness on behalf of friends coping with dementia. Storytelling as a means of communication holds a place of prominence in Hawai'ian culture; exchange of ideas, as well as reminiscence, is called "talk story." In this article, lives now built around coping with dementia are woven into a story fabric as into a Hawai'ian quilt.
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http://dx.doi.org/10.1891/1078-4535.25.2.113 | DOI Listing |
Alzheimers Dement
December 2024
Brain and Mind Institute, Aga Khan University, Nairobi, Kenya.
Background: Alzheimer's disease (AD) is the most common type of dementia globally and is the fifth leading cause of death and disability. About half of all people suffering from the disease are living in sub-Saharan African Countries including Kenya. However, research on dementia has been almost exclusively focused on the Global North societies.
View Article and Find Full Text PDFAlzheimers Dement (N Y)
December 2024
Introduction: Professional caregivers (nursing assistants and personal care aides) in nursing homes (NH) and assisted living (AL) provide the majority of long-term residential care for persons with Alzheimer's disease and related dementias. Their work is stressful, but until recently, no measures were available to assess stress in this workforce. Using the new Long-Term Care Cope (LTC COPE) scale, this study evaluates the relationship of coping with staff demographic characteristics and outcomes; the findings can be used to develop and evaluate interventions to improve staff well-being.
View Article and Find Full Text PDFGeriatrics (Basel)
December 2024
Medicine for Older People, University Hospital Southampton NHS Foundation Trust, Southampton SO16 6YD, UK.
Hospitalisation and prolonged length of stay is associated with deconditioning that risks adverse outcomes after discharge. Less is known about the psychological impact on older people after hospital discharge. The purpose of this systematic review was to elucidate factors contributing to psychological stress in older patients post-discharge to inform better discharge planning.
View Article and Find Full Text PDFAppl Psychol Health Well Being
February 2025
Department of Computing and Department of Rehabilitation Sciences, Hong Kong Polytechnic University, Hong Kong.
The Benefit-Finding Intervention, a face-to-face psychoeducation program with a focus on the positive meanings of caregiving, has been found to reduce depressive symptoms and burden in dementia caregivers. The program was revamped into a computer-delivered web-based program to enable 24/7 access without location restriction. This study evaluates the efficacy of this new online program called Positive Dementia Caregiving in 30 Days (PDC30).
View Article and Find Full Text PDFSAGE Open Nurs
December 2024
Department of Geriatric Medicine, Tan Tock Seng Hospital, Singapore, Singapore.
Introduction: Family members caring for a person living with dementia (PWD) can experience caregiver burden, leading to psychological distress if unmanaged. It's essential for healthcare professionals, especially nurses to identify caregivers at risk of stress and depression, triggering prompt management during their contact with caregivers of PWD. The study team developed an evidence-based caregiver burden-mastery hybrid assessment and intervention decision matrix (CHAT-MI) for caregivers of PWD and examined its feasibility of use.
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