Disruptive illness contexts and liminality in the accounts of young people with type 1 diabetes.

Sociol Health Illn

Academic Unit of Diabetes, Endocrinology and Metabolism, Department of Oncology & Metabolism, School of Medicine and Biomedical Sciences, University of Sheffield, Sheffield, UK.

Published: September 2019

AI Article Synopsis

  • The study explores how young adults with type 1 diabetes navigate their illness experiences using Bury's concept of biographical disruption.
  • Participants employed various identities to present themselves as 'normal,' often concealing their diabetes in public to challenge stereotypes.
  • They displayed independence from medical pressures and adopted a pragmatic view of their condition, perceiving it as manageable, leading to a complex but stable adjustment in their lives.

Article Abstract

We utilise Bury's (1982) biographical disruption to examine young people's experiences of type 1 diabetes. Our findings show that young adults adopted various 'subject positions' across different illness contexts. The subject positions deployed are intended to produce a particular kind of normal embodied identity unaffected by diabetes. First, participants concealed their illness in public spaces and challenged cultural stereotypes of diabetes to maintain a normal illness biography. Disruption was ever present and required careful negotiation to avoid exposure of illness in public. Young adults upheld a 'normal public presentation'. Second, they resisted the medical system's pressure to adhere to glucose targets asserting and maintaining a subject position of 'independent and autonomous young adults'. Here, disruption was transient and temporary, present in the clinic but not always beyond. It remained in the background for much of the time until it was reinforced by parents or at meal times. Third, young adults acquired a 'pragmatic subject position' with diabetes viewed as complex but manageable, no longer a target for resistance. Frank's (1995) 'narrative restitution' is adopted to describe the transition to life with 'normal' illness. We argue that illness experience was 'liminal' and reflected the subject positions adopted by young adults.

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Source
http://dx.doi.org/10.1111/1467-9566.12906DOI Listing

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