Digital Interventions to Build a Patient Registry for Rheumatology Research.

Rheum Dis Clin North Am

Division of Clinical Immunology & Rheumatology, University of Alabama at Birmingham, Faculty Office Tower, 510 20th Street South #834, Birmingham, AL 35294, USA.

Published: May 2019

This article aims to describe key issues, processes, and outcomes related to development of a patient registry for rheumatology research using a digital platform where patients track useful data about their condition for their own use while contributing to research. Digital interventions are effective to build a patient research registry for people with rheumatoid arthritis and other rheumatic and musculoskeletal diseases. ArthritisPower provides evidence of the value of digital interventions to build community support for research and to transform patient engagement and patient-generated data capture.

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.rdc.2019.01.009DOI Listing

Publication Analysis

Top Keywords

digital interventions
12
patient registry
12
interventions build
8
build patient
8
registry rheumatology
8
digital
4
patient
4
rheumatology article
4
article aims
4
aims describe
4

Similar Publications

Want AI Summaries of new PubMed Abstracts delivered to your In-box?

Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!