AI Article Synopsis
- The study investigates the use of the modified Psychosocial Assessment Tool (PAT-DSD) to identify families affected by disorders of sex development (DSD) who may face adjustment challenges.
- Approximately one-third of the participating families exhibited psychosocial risks, and the PAT-DSD showed high internal reliability with a good correlation to other measures of caregiver distress and child behavioral issues.
- The findings support the PAT-DSD's reliability and validity for screening overall family risk, though it’s suggested to avoid using it for specific psychosocial concerns due to varying reliability among its subscales.
Article Abstract
Background/aims: Utilization of a psychosocial screener to identify families affected by a disorder/difference of sex development (DSD) and at risk for adjustment challenges may facilitate efficient use of team resources to optimize care. The Psychosocial Assessment Tool (PAT) has been used in other pediatric conditions. The current study explored the reliability and validity of the PAT (modified for use within the DSD population; PAT-DSD).
Methods: Participants were 197 families enrolled in the DSD-Translational Research Network (DSD-TRN) who completed a PAT-DSD during a DSD clinic visit. Psychosocial data were extracted from the DSD-TRN clinical registry. Internal reliability of the PAT-DSD was tested using the Kuder-Richardson-20 coefficient. Validity was examined by exploring the correlation of the PAT-DSD with other measures of caregiver distress and child emotional-behavioral functioning.
Results: One-third of families demonstrated psychosocial risk (27.9% "Targeted" and 6.1% "Clinical" level of risk). Internal reliability of the PAT-DSD Total score was high (α = 0.86); 4 of 8 subscales met acceptable internal reliability. A priori predicted relationships between the PAT-DSD and other psychosocial measures were supported. The PAT-DSD Total score related to measures of caregiver distress (r = 0.40, p < 0.001) and to both caregiver-reported and patient self-reported behavioral problems (r = 0.61, p < 0.00; r = 0.37, p < 0.05).
Conclusions: This study provides evidence for the reliability and validity of the PAT-DSD. Given variability in the internal reliability across subscales, this measure is best used to screen for overall family risk, rather than to assess specific psychosocial concerns.
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| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6512800 | PMC |
| http://dx.doi.org/10.1159/000496114 | DOI Listing |
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