AI Article Synopsis
Article Abstract
Objective: To review information concerning current federal genetic nondiscrimination laws to increase awareness and knowledge of these laws for oncology nurses.
Data Sources: Genetic information nondiscrimination policy research, case law, professional organization Web sites, peer-reviewed journals.
Conclusion: Genetic nondiscrimination is addressed in four major federal laws. The need continues for comprehensive federal genetic nondiscrimination legislation, applicable to all Americans regardless of their genetic predisposition.
Implications For Nursing Practice: Oncology nurses need to effectively advocate for patients and their families by interpreting and disseminating provisions and limitations contained in existing federal genetic discrimination laws.
Download full-text PDF |
Source |
|---|---|
| http://dx.doi.org/10.1016/j.soncn.2018.12.004 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
"Equity" in genomic health policies: a review of policies in the international arena.
Front Public Health
January 2025
Centre for Health Policy, Melbourne School of Population and Global Health, University of Melbourne, Carlton, VIC, Australia.
Introduction: The field of genomics is rapidly evolving and has made significant impact on the diagnosis and understanding of rare and genetic diseases, in guiding precision medicine in cancer treatment, and in providing personalized risk assessment for disease development and treatment responses. However, according to the literature, there is widespread socio economic and racial inequities in the diagnosis, treatment, and in the use of genomic medicine services. This policy review sets out to explore the concept of equity in access to genomic care, the level of inclusion of equity and how it is addressed and what mechanisms are in place to achieve equity in genomic care in the international health policy.
View Article and Find Full Text PDF"Should I Let Them Know I Have This?": Multifaceted Genetic Discrimination and Limited Awareness of Legal Protections among Individuals with Hereditary Cancer Syndromes.
Public Health Genomics
December 2024
Genomics Health Services Research Program, St. Michael's Hospital, Unity Health Toronto, Toronto, Ontario, Canada.
Introduction: Hereditary cancer syndromes (HCS), such as hereditary breast and ovarian cancer syndrome (HBOC) and Lynch syndrome (LS), represent approximately 10% of all cancers. Along with medical burdens associated with the genetic risk of developing cancer, many individuals face stigma and discrimination. Genetic discrimination refers to negative treatment, unfair profiling, or harm based on genetic characteristics, manifesting as "felt" stigma (ostracization without discriminatory acts) or "enacted" stigma (experiencing discriminatory acts).
View Article and Find Full Text PDFData protection legislation in Africa and pathways for enhancing compliance in big data health research.
Health Res Policy Syst
October 2024
Division of Human Genetics, University of Cape Town, Cape Town, South Africa.
Article Synopsis
- The availability of large amounts of personal health data offers great potential for improving public health and personalized medicine, but legal ambiguities complicate data sharing and usage.
- An analysis of 37 African data protection laws revealed key principles such as confidentiality, accountability, and data subject rights that must be followed when handling sensitive health data.
- Recommendations for data science initiatives in Africa focus on ensuring compliance with laws while facilitating responsible data use for health research and innovation.
The Key Features of a Genetic Nondiscrimination Policy: A Delphi Consensus Statement.
JAMA Netw Open
September 2024
Centre of Genomics and Policy, McGill University, Montreal, Quebec, Canada.
Importance: Governments worldwide have become increasingly cognizant of the spread of genetic discrimination (negative treatment or harm on the basis of actual or presumed genetic characteristics). Despite efforts by a number of governments to establish regulations addressing this phenomenon, public concern about genetic discrimination persists.
Objective: To identify key elements of an optimal genetic nondiscrimination policy and inform policymakers as they seek to allay genetic nondiscrimination and related public anxieties.
The year 2023 marked the 60 anniversary of screening newborns in the United States for diseases that benefit from early identification and intervention. All around the world, the goal of NBS is to facilitate timely diagnosis and management to improve individual health outcomes in all newborns regardless of their place of birth, economic circumstances, ability to pay for treatment, and access to healthcare. Advances in technology to screen and treat disease have led to a rapid increase in the number of screened conditions, and innovations in genomics are expected to exponentially expand this number further.
View Article and Find Full Text PDFWant AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!