Background: The potential for the secondary use of electronic health records (EHRs) is underused due to restrictions in national legislation. For privacy purposes, legislative restrictions limit the availability and content of EHR data provided to secondary users. These limitations do not encourage healthcare organisations to develop procedures to promote the secondary use of EHRs.
Objective: The objective of this study is to identify factors that restrict the secondary use of unstructured EHRs in academic research in Finland and Sweden.
Method: A study was conducted to identify these availability-restricting issues that pertain to the academic secondary use of unstructured EHRs. Using semi-structured interviews, 14 domain experts in science, hospital management and business were interviewed to evaluate the efficiency of procedures and technologies that are implemented in secondary use processes.
Results: The results demonstrate three aspects that restrict the availability of unstructured EHRs for secondary purposes: (i) the management and (ii) privacy preservation of such data as well as (iii) potential secondary users.
Conclusion: Based on these categories, two approaches for the secondary use of unstructured EHRs are identified: the protected processing environment and altered data.
Implications: The protected processing environment ensures patient privacy by providing unstructured EHRs for exclusive user groups that have preferred use intentions. Compared to the use of such processing environments, data alteration enables the secondary use of unstructured EHRs for a larger user group with various use intentions but that yield less valuable content.
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http://dx.doi.org/10.1177/1833358318817473 | DOI Listing |
JCO Clin Cancer Inform
January 2025
Department of Health Outcomes and Biomedical Informatics, College of Medicine, University of Florida, Gainesville, FL.
Purpose: Lung cancer screening (LCS) has the potential to reduce mortality and detect lung cancer at its early stages, but the high false-positive rate associated with low-dose computed tomography (LDCT) for LCS acts as a barrier to its widespread adoption. This study aims to develop computable phenotype (CP) algorithms on the basis of electronic health records (EHRs) to identify individual's eligibility for LCS, thereby enhancing LCS utilization in real-world settings.
Materials And Methods: The study cohort included 5,778 individuals who underwent LDCT for LCS from 2012 to 2022, as recorded in the University of Florida Health Integrated Data Repository.
Clin Transl Sci
January 2025
Division of Digestive and Liver Diseases, Department of Medicine, Center for Liver Disease and Transplantation, Columbia University Irving Medical Center, New York, New York, USA.
Nonalcoholic fatty liver disease (NAFLD) is the most common global cause of chronic liver disease and remains under-recognized within healthcare systems. Therapeutic interventions are rapidly advancing for its inflammatory phenotype, nonalcoholic steatohepatitis (NASH) at all stages of disease. Diagnosis codes alone fail to recognize and stratify at-risk patients accurately.
View Article and Find Full Text PDFJAMIA Open
February 2025
Georgia Tech Research Institute, Atlanta, GA 30308, United States.
Objective: The resurgence of syphilis in the United States presents a significant public health challenge. Much of the information needed for syphilis surveillance resides in electronic health records (EHRs). In this manuscript, we describe a surveillance platform for automating the extraction of EHR data, known as SmartChart Suite, and the results from a pilot.
View Article and Find Full Text PDFCirc Arrhythm Electrophysiol
January 2025
Department of Medicine, Stanford University, CA (R.F., K.A.B., Z.A., J.G., B.D., H.J.C., P.G., P.C., M. Pedron, S.R.-C., Y.B.D., H.D.L., T.B., M. V. P, M.R., A.J.R., S.M.N.).
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