AI Article Synopsis
- The article explores public and patient involvement (PPI) practices for Deaf individuals who use sign language, particularly in relation to their experiences with dementia.
- It emphasizes the importance of establishing trust in environments where knowledge is not formally documented and recognizes that being a community insider is essential but not enough for effective PPI.
- Recommendations are provided for enhancing authentic PPI practices with Deaf sign language users, alongside a discussion of the challenges they face in participating in health and social care research.
Article Abstract
This article concerns Public and Patient Involvement practice with Deaf people who are sign language users. It draws on the experience of public and patient involvement in a project concerning Deaf people's lived experience of dementia and focusses on: (i) creating the conditions of trust in circumstances of unrecorded knowledge; (ii) being a community insider as a necessary but not sufficient condition without public and patient involvement and (iii) community consultation as influencing positive public and patient involvement practice. It sets out a series of recommendations for authentic public and patient involvement practice with Deaf sign language users linked to each of these themes before considering more generally barriers to Deaf people's involvement in public and patient involvement in health and social care research.
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| http://dx.doi.org/10.1177/1471301218789567 | DOI Listing |
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