Palliation in pediatric otorhinolaryngology is a rarely discussed but important aspect of care. This review encapsulates current thinking on pediatric palliative care (PC) and demonstrates, through one case, the impact of integrating PC into clinical care. We encourage early consideration of pediatric palliative care approaches for children with complex otorhinolaryngologic disorders.
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| http://dx.doi.org/10.1016/j.ijporl.2018.07.016 | DOI Listing |
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Epileptiform discharges in the context of self-limited pediatric focal epilepsy (EDSelFEC) in pediatric hemispherotomy patients: Role of white matter abnormalities.
Epileptic Disord
December 2024
Center for Pediatric Neurology and Neurorehabilitation, Epilepsy Center for Children and Adolescents, Schoen Clinic Vogtareuth, Vogtareuth, Germany.
Objective: To investigate the frequency of epileptiform discharges associated with self-limited focal epilepsy (EDSelFEC) in children who have undergone a hemispherotomy and to evaluate whether patients with coexistence of EDSelFEC and structural hemispheric epilepsies differ from patients without coexistence of EDSelFEC and whether there are differences between the two groups with regard to preoperative management and postoperative outcome.
Methods: Data on 131 children who underwent a hemispherotomy between January 1999 and January 2015 were retrieved from the Epilepsy center's epilepsy surgery database. Children with EDSelFEC were compared with children without EDSelFEC with respect to epileptogenic hemispheric pathology, family history, age at epilepsy onset, timing of surgery, lesion laterality, preoperative cognitive function, response to sodium channel blocker antiepileptic medication, and surgical outcome.
Phenotypic traits and family history in patients with 22q11.2 deletion syndrome and generalized epilepsy: A multicenter case-control study.
Epilepsia
December 2024
Department of Human Neurosciences, Sapienza University of Rome, Rome, Italy.
Objective: This study was undertaken to characterize the clinical and genetic features of patients with 22q11.2 deletion syndrome (22q11.2DS) and generalized epilepsy compared with 22q11.
View Article and Find Full Text PDFNavigating the Spectrum of Double-İnlet Left Ventricle Presentations: Contemporary Retrospective Cohort Study.
Echocardiography
January 2025
Department of Pediatric Cardiology, Cerrahpasa Medical Faculty, Istanbul, Turkey.
Purpose: We presented the experience of a tertiary care center for maternal and fetal diseases and assessed the findings fetuses with double-inlet left ventricle (DILV) regarding fetal echocardiography, prenatal course including fetal growth and death, and postnatal outcome.
Methods: In this retrospective study, patients diagnosed with DILV via prenatal ultrasound in the maternal-fetal medicine department between 2015 and 2023 were included to evaluate important aspects of prenatal diagnosis and course, as well as postnatal management and outcome.
Results: There were 33 DILV cases prenatally diagnosed and postnatally confirmed.
A pilot study of the WE BEAT Well-Being Education Programme to build resilience in adolescents with heart disease.
Cardiol Young
December 2024
Department of Pediatrics, University of Michigan, Ann Arbor, MI, USA.
Objective(s): To examine feasibility, acceptability, and preliminary effectiveness of a novel group-based telemedicine psychoeducation programme aimed at supporting psychological well-being among adolescents with Fontan-palliated CHD.
Study Design: A 5-week telemedicine psychoeducation group-based programme (WE BEAT) was developed for adolescents ( = 20; 13-18 years) with Fontan-palliated CHD aimed at improving resiliency and psychological well-being. Outcome measures included surveys of resilience (Connor-Davidson Resilience Scale), benefit finding (Benefit/Burden Scale for Children), depression, anxiety, peer relationships, and life satisfaction (National Institutes of Health Patient-Reported Outcomes Measurement Information System scales).
Right Ventricular Remodeling and Function in Hypoplastic Left Heart Syndrome.
JACC Adv
December 2024
The Labatt Family Heart Centre, Division of Cardiology, The Hospital for Sick Children, Department of Paediatrics, University of Toronto, Toronto, Canada.
Article Synopsis
- - The right ventricle in hypoplastic left heart syndrome (HLHS) functions as the systemic ventricle, dealing with varying volume loads and pressures throughout a patient’s treatment, particularly before and after the Fontan procedure.
- - Factors like the anatomy of HLHS, treatment choices, and heart valve issues affect the right ventricle's size and performance, which can lead to problems such as both systolic and diastolic dysfunction.
- - This review gathers recent research findings to enhance understanding of right ventricle remodeling in HLHS, emphasizing the need for ongoing studies to maintain heart health during treatment.
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