In Norway, a national consensus-based guideline used to address thresholds for offering life support at extreme preterm birth was issued in 1998. Since then, therapeutic advances may have changed attitudes and expectations to treatment, both within the medical community and the public, and there are concerns that systematic variations in treatment practices may exist. With this article, we describe current practices and relate them to other ethical and legal comparable areas in health care. We conclude that a revision of the 1998 guideline is warranted to obtain a common understanding of prognoses and appropriate decision processes at the limit of viability.
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http://dx.doi.org/10.1542/peds.2018-0478E | DOI Listing |
BMJ Open
December 2024
Clinical Sciences, Murdoch Children's Research Institute, Melbourne, Victoria, Australia.
Introduction: Infants born very preterm (VPT, <32 weeks' gestation) are at increased risk for neurodevelopmental impairments including motor, cognitive and behavioural delay. Parents of infants born VPT also have poorer mental health outcomes compared with parents of infants born at term.We have developed an intervention programme called TEDI-Prem (Telehealth for Early Developmental Intervention in babies born very preterm) based on previous research.
View Article and Find Full Text PDFJAMA Netw Open
January 2025
Department of Clinical Medicine, University of Turku, Turku, Finland.
Importance: Family-centered care (FCC) in neonatal intensive care units (NICUs) is critical for parental involvement and infant well-being, yet few studies have evaluated the impact of FCC interventions on practice or examined how implementation fidelity may affect these outcomes.
Objectives: To evaluate the association between the Close Collaboration With Parents intervention and FCC practices and how implementation fidelity may modify these outcomes.
Design, Setting, And Participants: This nonrandomized clinical trial had a before-and-after design.
This program evaluation aimed to assess the impact of a streamlined and less expensive version of Goslings-I (a NICU parent education program) on parents' early language and literacy practices and their confidence in interacting with their infants. This evaluation used a single-group, pre- and posttest, mixed-methods design. Sixty-three parents completed pre- and postprogram questionnaires on the frequency of language and literacy activities, confidence in understanding infant signals, and program satisfaction.
View Article and Find Full Text PDFJ Perinat Neonatal Nurs
December 2024
Author Affiliations: Faculty of Health Sciences, Department of Nursing, Hasan Kalyoncu University, Gaziantep, Turkey (Dr Coşkun); School of Nursing and Health Sciences, The College of New Jersey, Council of International Neonatal Nurses, Inc, Augusta, Georgia (Dr Kenner); and Yusuf Şerefoğlu Faculty of Health Sciences, Department of Nursing, Kilis 7 Aralik University, Kilis, Turkey (Dr Elmaoğlu).
Objective: This study aims to examine neonatal intensive care unit (NICU) nurses' perceptions of artificial intelligence (AI) technologies, particularly language models, and their impact on nursing practices.
Background: AI is rapidly spreading in healthcare, transforming nursing practice. Understanding the role of AI in NICUs in the discharge process is crucial for understanding nurses' perceptions of these technologies.
Patient Educ Couns
December 2024
Department of Pediatrics and Neonatology, OLVG, Amsterdam, the Netherlands; Amsterdam UMC, University of Amsterdam, Vrije Universiteit, Emma Children's Hospital, Amsterdam, the Netherlands.
Objective: To examine the effects of clinicians' provision of (un)reasonable arguments on parent-related outcomes in neonatal (intensive) care (NICU), starting from the NICU Communication Framework.
Methods: A video-vignette experiment, in which we systematically varied clinicians' use of (reasonable, unreasonable, no) argumentation across two non-acute and two acute decision-making scenarios (3×4 design). Reasonable arguments were medically appropriate and constructive reasons to support the treatment plan, as defined by an expert panel.
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