Introduction: For immigrants diagnosed with cancer, the stress of a cancer diagnosis and treatment can be amplified by unfamiliarity with the health system, lack of culturally and linguistically appropriate information, and inability to communicate efficiently and accurately with the treating team. Lower levels of health literacy may be one factor underlying poorer outcomes among immigrant patients with cancer, but there have been few studies exploring this issue to date. This study aims to investigate the levels and correlates of health literacy in two immigrant populations affected by cancer and their English-speaking counterparts.
Methods And Analysis: Levels and correlates of health and eHealth literacy will be evaluated using a cross-sectional self-report questionnaire. Eligible, English, Arabic and Vietnamese patients with cancer and survivors (n=50 of each language group) will be invited to complete a questionnaire in their preferred language containing the Health Literacy Questionnaire, the eHealth Literacy Scale and study-specific questions assessing potential correlates of poor health literacy, including gender, age, education level, acculturation into Australian society and number of chronic illnesses.Multivariable logistic regression will be used to identify potential approaches to support effective communication with healthcare providers and preferred methods for assessing patient-reported outcomes (PROs) to support culturally appropriate cancer care.The outcomes of this study will be used to better meet the needs of immigrant populations, including the tailoring of interventions appropriate to different health literacy levels. Outcomes will also inform strategies for PRO assessment to inform unmet needs and to address Australian healthcare system challenges to meet the needs of immigrant populations.
Ethics And Dissemination: The study was reviewed and approved by the Human Research Ethics Committee of South Western Sydney Local Health District (approval number: HREC/16/LPOOL/650). Results from the study will aim to be published at international conferences and in peer-reviewed journals.
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http://dx.doi.org/10.1136/bmjopen-2018-021666 | DOI Listing |
Alzheimers Dement
December 2024
Harvard T.H. Chan School of Public Health, Cambridge, MA, USA.
Background: Informant reports are commonly regarded as reliable and supplemental alongside respondent cognitive assessments, particularly in low-literacy settings with absent normative data. We evaluate the performance of the Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE) in rural South Africa.
Method: This study utilizes data from the Cognition and Dementia in a Longitudinal Health and Aging Study in South Africa (HAALSI-HCAP).
Alzheimers Dement
December 2024
Northwestern University Feinberg School of Medicine, Chicago, IL, USA.
Background: Both limited health literacy (HL) and elevated blood pressure variability (BPV) in later life have been associated with the risk of dementia and cognitive impairment. However, little is known about the relationship between HL, BPV, and domain-specific cognitive decline. We aimed to examine this relationship among primary care older adults.
View Article and Find Full Text PDFBackground: Public interest in brain health has reached unprecedented levels, yet research on AD/dementia literacy has continued to reveal gaps and misconceptions, especially among those with lower education. The public's knowledge has often been characterized as particularly weak around AD/dementia risk factors. Here we were interested in whether personal risk perceptions among dementia-free community-dwelling older adults are evidence-based.
View Article and Find Full Text PDFAlzheimers Dement
December 2024
Seoul National University Bundang Hospital, Seongnam, Korea, Republic of (South).
Background: Illiteracy is highly prevalent in older women than in men, but whether the impact of illiteracy on dementia risk is differed by gender remains unclear.
Method: We enrolled 5,217 non-demented older adults aged ≥ 60 years from the Korean Longitudinal Study on Cognitive Aging and Dementia. Presence of illiteracy was assessed by research nurses and the diagnoses of incident dementia and Alzheimer's disease (AD) were made by standardized diagnostic interview by geriatric psychiatrists.
Alzheimers Dement
December 2024
Columbia University Irving Medical Center, New York, NY, USA.
Background: Alzheimer's disease (AD) health literacy is low in high-risk populations and is likely a determinant of timely care seeking behavior. Our group aimed to develop a novel brief questionnaire for use in community outreach and related studies of AD awareness.
Methods: We developed an initial 15-item AD knowledge questionnaire "ASK-AD (Assess Symptoms and Knowledge of AD)" following pilot study and cognitive interviews with subject matter experts along with elementary school children.
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