Background: Access to reperfusion therapies in patients with large vessel occluding acute ischemic stroke demands process reorganization and optimization. Neurovascular networks are being built up to provide 24/7 endovascular stroke therapy service. In times of an increasingly complex stroke rescue chain little is known about patients' and their relatives' treatment awareness.
Methods: All patients, who received any kind of acute reperfusion treatment between January and August 2017 in the university hospital Aachen, and their proxies, were included in the survey. Patients were either primarily or secondarily transferred.
Results: For all questions regarding stroke treatment patients and their caregivers provided concurring answers. 40% of both patients and caregivers did not understand the treatment that was performed. Finally, patients who perceived on their own that stroke detection was delayed had significantly longer onset to door times than patients who did not have this impression.
Conclusions: This study showed that patients' and proxies' answers correlated significantly. In case of patients' unavailability extrapolation of treatment satisfaction from answers by proxies might be permitted. High percentages of patients and caregivers do not understand relevant information, possibly due to limits of communication in an emergency setting or deficits in communication during the hospital stay. More emphasis should be laid on providing further information during the hospital stay.
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http://dx.doi.org/10.1016/j.jstrokecerebrovasdis.2018.05.029 | DOI Listing |
Psychooncology
January 2025
Ferkauf Graduate School of Psychology, Yeshiva University, Bronx, New York, USA.
Background: Family members can be required to take on the role of "caregiver" at any stage of life, causing disruption and psychological distress. This review sought to describe the traumatic impact (i.e.
View Article and Find Full Text PDFPurpose: Stigma contributes to fear and shame, resulting in delays in care-seeking behavior among individuals with cancer. As a social construct, stigma is affected by language, religion, culture, and local norms. This study explored pediatric cancer stigma at the time of diagnosis across diverse settings through the adaptation of two stigma measures.
View Article and Find Full Text PDFCancer Nurs
January 2025
Author Affiliations: School of Nursing (Ms Skipper and Drs Rice and Landier), Institute for Cancer Outcomes and Survivorship, School of Medicine (Ms Skipper and Drs Wadhwa, York, Bhatia, and Landier), and Division of Pediatric Hematology/Oncology, Department of Pediatrics, School of Medicine (Drs Wadhwa, Bhatia, and Landier), University of Alabama at Birmingham.
Background: Parents of children newly diagnosed with cancer require specialized education to provide care for their child at home, including the management of complex medication regimens.
Objective: To assess the complexity of home medication regimens in a cohort of newly diagnosed pediatric oncology patients.
Methods: We inventoried and categorized all discharge medications for each patient and used the Medication Regimen Complexity Index (MRCI) to quantify the complexity of the prescribed medication regimens.
J Cross Cult Gerontol
January 2025
Chinese Center for Disease Prevention and Control, Shibei District, Qingdao, 266000, China.
Parkinson's Disease (PD), the second most prevalent neurodegenerative disorder globally, often carries stigma for those affected; however, stigma's impact on PD caregivers is not well understood. This study investigates PD stigma and its interplay with cultural values, as well as explores the role of depressive symptomatology in shaping help-seeking attitudes among individuals with PD and the provision of support by PD caregivers. Using cross-sectional data collected from people living with PD and their caregivers, this study examines how adherence to Asian values influences the link between self-stigma and help-seeking tendencies in PD patients, as well as how affiliate stigma is linked to caregivers' willingness to help.
View Article and Find Full Text PDFHeart Fail Rev
January 2025
Cardiology Unit, Department of Advanced Biomedical Sciences, University Federico II Naples, Naples, Italy.
The current paper reports the model organization, level of health care, and type of medical and research activities related to the existing heart failure centers of the Italian Society of Cardiology. Of note, we conduced an internal survey among the members of heart failure working group and related hospital and territorial sites about the quality of care and assistance levels according to the local hospital resources and type of diagnostic therapeutic and management resources. Thirty-two hospital ambulatorial structures have been identified, the centers were equally distributed within the national ground, with similar concentration between north and south regions of the Italian country.
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