Collect Once - Use Many Times can possibly increase the research potential of clinical data from electronic healthcare records (EHR). The objective of this study was to achieve an increased understanding of the research potential of low back pain patients' municipal EHR by assessing the data quality. This explanatory sequentially mixed-methods case study consists of descriptive- and content analysis. The descriptive analysis was based on data extracted from the municipal EHR. The indicators chosen were pain and physical function. Included subjects were low back pain patients in the Northern Denmark. For the content analysis, clinical notes from the municipal EHR was used. The descriptive analysis (n=172) showed that the outcome measure for pain was documented in 50% of the municipal EHR and the outcome measure for physical function was documented in 48% of the municipal EHR. The content analysis (n=5) revealed imprecise, inconsistent, and nonsystematic use of outcome measures. In conclusion, the poor data quality observed is a potential barrier for introducing the Collect Once - Use Many Times paradigm, which is a prerequisite for reusing clinical data for quality assessment and research purposes.
Download full-text PDF |
Source |
---|
BMC Prim Care
December 2024
School of Life Course & Population Sciences, Department of Population Health Sciences, King's College London, London, UK.
Background: We aimed to identify and characterise the longitudinal patterns of multimorbidity associated with stroke.
Methods: We used an unsupervised patient-oriented clustering approach to analyse primary care electronic health records (EHR) of 30 common long-term conditions (LTC) in patients with stroke aged over 18, registered in 41 general practices in south London between 2005 and 2021.
Results: Of 849,968 registered patients, 9,847 (1.
J Med Internet Res
November 2024
Department of Communication, Cornell University, Ithaca, NY, United States.
Background: Patient-centered communication refers to interaction between patients and health professionals that considers patients' preferences and empowers patients to contribute to their own care. Research suggests that patient-centered communication promotes patients' satisfaction with care, trust in physicians, and competence in their abilities to manage their health.
Objective: The study aims to explore the role of patients' use of electronic health records (EHRs) in promoting patient-centered communication.
JMIR Med Inform
October 2024
Department of Population Health, New York University Grossman School of Medicine, New York, NY, United States.
Background: Electronic health records (EHRs) are increasingly used for epidemiologic research to advance public health practice. However, key variables are susceptible to missing data or misclassification within EHRs, including demographic information or disease status, which could affect the estimation of disease prevalence or risk factor associations.
Objective: In this paper, we applied methods from the literature on missing data and causal inference to assess whether we could mitigate information biases when estimating measures of association between potential risk factors and diabetes among a patient population of New York City young adults.
BMJ Open
September 2024
Department of Surgery Section of Vascular Surgery, Dartmouth-Hitchcock Medical Center, Lebanon, New Hampshire, USA.
Objectives: To assess the feasibility of assessing long-term outcomes of peripheral vascular intervention (PVI) by linking data from a clinical registry to electronic health records (EHR) data from a clinical research network.
Design: Observational cohort study.
Setting: Vascular Quality Initiative registry linked to INSIGHT Clinical Research Network, which aggregated EHR data from multiple institutions in New York City.
JAMA Netw Open
September 2024
Department of Psychiatry, Columbia University Irving Medical Center, New York, New York.
Importance: Stress and viral illness during pregnancy are associated with neurodevelopmental conditions in offspring. Autism screening positivity for children born during the pandemic remains unknown.
Objective: To examine associations between prenatal exposure to the pandemic milieu and maternal SARS-CoV-2 infection with rates of positive Modified Checklist for Autism in Toddlers, Revised (M-CHAT-R) screenings.
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!