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Tools and Strategies to Integrate Multi-Domain Information for Personalized Decision-Making in Oncological Care Pathways: A Scoping Review.
J Multidiscip Healthc
August 2024
Department of Family Medicine, Care and Public Health Research Institute (CAPHRI), Faculty of Health Medicine and Life Sciences (FHML) Maastricht University, Maastricht, the Netherlands.
Introduction: There is a growing interest in personalized decision-making in oncology. According to the Integrated Oncological Decision-Making Model (IODM), decisions should be based on information from three domains: (1) medical technical information, (2) patients' general health status and (3) patients' preferences and goals. Little is known about what kind of tool/strategy is used to collect the information, by whom this is collected (nurse, clinician) when this is collected (moment in the care pathway), and how this information should be collected and integrated within decision-making in oncological care pathways, and what its impact is.
View Article and Find Full Text PDFDevelopment and validation of a frailty index based on data routinely collected across multiple domains in NSW hospitals.
Australas J Ageing
June 2021
Laboratory of Ageing and Pharmacology, Faculty of Medicine and Health, Kolling Institute of Medical Research, Royal North Shore Hospital and Northern Clinical School, University of Sydney, Sydney, NSW, Australia.
Objective(s): To develop and validate a frailty index (FI) that covers multiple domains, using routine hospital data. To investigate the FI's validity, after excluding medication-related items (FI-ExMeds), for studies of frailty and polypharmacy.
Methods: A FI was derived from routine NSW hospital data following standard published guidance.
The responsiveness of goal attainment scaling using just one goal in controlled clinical trials: an exploratory analysis.
J Patient Rep Outcomes
May 2020
Division of Geriatric Medicine, Department of Medicine, Dalhousie University and Nova Scotia Health Authority, 5955 Veterans' Memorial Lane, Halifax, NS, B3H 2E1, Canada.
Background: Goal Attainment Scaling (GAS) is an individualized outcome measure that allows the setting of personalized treatment goals. We compared the responsiveness of GAS when individuals set only one goal instead of the recommended three or more goals.
Methods: We conducted exploratory analyses on data from two randomized controlled trials: the Video-Imaging Synthesis of Treating Alzheimer's Disease (VISTA) (n = 130); and the Mobile Geriatric Assessment Team (MGAT) (n = 265).
A patient-centred multidomain instrument for improving the clarity of outcomes reporting and documentation in complex airway surgery.
Clin Otolaryngol
December 2018
The Robert White Centre for Airway, Voice and Swallowing, Department of Ear Nose and Throat Surgery, Poole Hospital NHS Foundation Trust, Poole, UK.
Perceptions of symptoms and expectations of advanced therapy for Parkinson's disease: preliminary report of a Patient-Reported Outcome tool for Advanced Parkinson's disease (PRO-APD).
Health Qual Life Outcomes
January 2014
Department of Neurology, King's College Hospital, London, UK.
Background: What do patients expect from a treatment? A patient-centred approach to treatment is becoming necessary given the choices for invasive treatments for Parkinson's disease. Patient's perceptions of severity and expectations from complex therapies have not been studied. We describe the rationale and concept of developing a Patient-Reported Outcome (PRO) tool to assess perceptions of symptom severity and expectations of therapy.
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