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http://dx.doi.org/10.1542/peds.2018-0361 | DOI Listing |
Genet Med Open
April 2024
Department of Psychology, University of the Philippines Diliman, Manila, Philippines.
Purpose: Maple syrup urine disease (MSUD) is a common inborn error of metabolism diagnosed in the Philippines. A family may experience stress, anxiety, sorrow, or feelings of helplessness when a child is diagnosed to have a genetic disorder, which can lead to chronic care and disability. This study aims to explore the psychosocial issues experienced by Filipino parents with children having MSUD.
View Article and Find Full Text PDFBMC Health Serv Res
December 2024
Psychiatric Liaison Service, Lausanne University Hospital and University of Lausanne, Avenue de Beaumont 23, Lausanne, 1011, Switzerland.
Background: Clinical supervision by psychiatric liaison clinicians is frequently provided in medical settings such as oncology and palliative care, but rarely in endocrinology. Consequently, the specific psychosocial issues faced by endocrinologists in their daily clinical practice and how they deal with them remain largely unknown. We aimed to explore individual supervisions of endocrinologists to gain insight into what kind of clinical situations they present, how they react to them and how this is worked through in supervision.
View Article and Find Full Text PDFEpilepsia
November 2024
Institute of Psychological Medicine and Clinical Neurosciences Cardiff University, Cardiff, UK.
Psychooncology
September 2024
Department of Head and Neck Surgery, Chris O'Brien Lifehouse, Camperdown, Australia.
Objective: Understanding survivorship issues among people with head and neck cancer (HNC) is important as survival rates increase. Most research has focused on urban patients, leaving a gap in understanding the challenges faced by those in rural areas. This study aims to summarise the literature on survivorship needs for people with HNC in rural areas.
View Article and Find Full Text PDFHealthcare (Basel)
July 2024
Department of Clinical Neuroscience, Karolinska Institutet, 171 77 Stockholm, Sweden.
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