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Dementia represents a growing public health burden with large social, racial, and ethnic disparities. The etiology of dementia is poorly understood, and the lack of robust biomarkers in diverse, population-representative samples is a barrier to moving dementia research forward. Existing biomarkers and other measures of pathology-derived from neuropathology, neuroimaging, and cerebrospinal fluid samples-are commonly collected from predominantly White and highly educated samples drawn from academic medical centers in urban settings.
View Article and Find Full Text PDF"I think I could have coped if I was sleeping better": Sleep across the trajectory of caring for a family member with dementia.
Dementia (London)
July 2023
School of Health, Victoria University of Wellington, Wellington, New Zealand.
Dementia-related sleep changes can lead to disruptions among families living with dementia which can jeopardise carers' wellbeing and ability to provide support. This research explores and represents the sleep of family caregivers across the trajectory of caring, before, during, and after the key period of their care recipient moving into residential care. The focus of this paper is viewing dementia caregiving as a trajectory, characterised by care needs which change over time.
View Article and Find Full Text PDFVeneto Region dementia-related mortality during the COVID-19 pandemic: multiple causes of death and time series analysis.
Eur J Public Health
April 2023
Epidemiological Department, Azienda Zero, Padova, Italy.
Background: Older individuals with dementia have been severely affected by the COVID-19 pandemic. There is a lack of in-depth evaluation of mortality trends using both the underlying cause of death (UCOD) and the multiple causes of death (MCOD) approaches. The objective of this study was to determine the impact of the COVID-19 pandemic on dementia-related deaths considering comorbidities and the place of death.
View Article and Find Full Text PDFPutting "the broken bits together": A qualitative exploration of the impact of communication changes in dementia.
J Commun Disord
February 2023
School of Health and Rehabilitation Sciences, The Univeristy of Queensland, St Lucia, QLD 4072, Australia; Queensland Aphasia Research Centre, Herston QLD 4029, Australia. Electronic address:
Introduction: Communication is an area of health and functioning that is profoundly affected by dementia. While it is known that people living with dementia and their care partners experience disruptions to daily activities and social engagement, detailed knowledge about the lived impact of dementia-related communication changes is lacking. This study sought an in-depth understanding of the lived experience of dementia-related communication changes and the associated impact, needs, and strategies.
View Article and Find Full Text PDFUsing Twitter to understand perspectives and experiences of dementia and caregiving at the beginning of the COVID-19 pandemic.
Dementia (London)
July 2022
College of Nursing, 4285University of Tennessee, Knoxville, TN, USA.
The COVID-19 pandemic has placed a tremendous burden on all of society, particularly among vulnerable populations such as people living with dementia and their caregivers. Efforts to understand the impact of the COVID-19 pandemic on those living with dementia are crucial towards addressing needs during the pandemic and beyond. This qualitative descriptive study includes a thematic analysis of 6938 tweets from March 17-24, 2020, that included direct or indirect references to COVID-19 and at least one of the following terms/hashtags: Alzheimer, #Alzheimer, dementia, and #dementia.
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