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Background: The use of visual methods in qualitative evidence synthesis (QES) adds a valuable dimension to the synthesis process by enhancing understanding and knowledge generation. Visual methods are currently underused and underreported in QES.
Methods: This is the first study to describe accessible visual methods that support various stages of QES and to show the application of visual methods to a Cochrane QES of 43 studies using meta-ethnography and systematic review methods.
The Effectiveness of Video Animations as a Tool to Improve Health Information Recall for Patients: Systematic Review.
J Med Internet Res
December 2024
University Clinic for Interdisciplinary Orthopedic Pathways (UCOP), Elective Surgery Center, Silkeborg Regional Hospital, Silkeborg, Denmark.
Background: Access to clear and comprehensible health information is crucial for patient empowerment, leading to improved self-care, adherence to treatment plans, and overall health outcomes. Traditional methods of information delivery, such as written documents and oral communication, often result in poor memorization and comprehension. Recent innovations, such as animation videos, have shown promise in enhancing patient understanding, but comprehensive investigations into their effectiveness across various health care settings are lacking.
View Article and Find Full Text PDFMulti-stakeholder sessions on major innovation topics in rare disease clinical trials.
Orphanet J Rare Dis
December 2024
Institut des Maladies Gènètiques Imagine- Necker Enfants malades Hospital, 24 Boulevard du Montparnasse, 75015, Paris, France.
Background: The European Joint Programme on Rare Diseases aims to enhance the rare diseases research ecosystem by bringing together stakeholders such as research funders, institutions and patient organizations. Work Package 20 focuses on the validation, use and development of innovative methodologies for rare disease clinical trials. This paper reports on the outcomes of a retreat held in April 2023, where areas for innovation and educational needs in rare disease clinical trials were discussed in multi-stakeholder sessions.
View Article and Find Full Text PDFRepresenting the Needs of Rural Caregivers of People Living With Alzheimer's Disease and Related Dementias Through User Personas.
Innov Aging
October 2024
Department of Health & Wellness Design, Indiana University School of Public Health, Bloomington, Indiana, USA.
Background And Objectives: Rural caregivers of people living with Alzheimer's disease and related dementias (ADRD) face unique caregiving challenges. Current interventions do not address many of the systemic barriers experienced by rural ADRD caregivers, including barriers related to geography, healthcare services access, and financial insecurity. The objective of this study was to gain a deeper understanding of rural ADRD caregivers' needs, strengths, and strategies in obtaining caregiving support, and to represent these attributes in the form of personas that can be used to design interventions for rural ADRD caregivers.
View Article and Find Full Text PDFWhiteboard-based video provides hispanic patients with an equivalent melanoma knowledge and retention compared to a detailed text-based melanoma educational program.
Arch Dermatol Res
December 2024
Department of Dermatology, Mayo Clinic, Scottsdale, AZ, USA.
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