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She knows that she will not come back: tracing patients and new thresholds of collective surveillance in PMTCT Option B. | LitMetric

AI Article Synopsis

  • Malawi, Uganda, and Zimbabwe implemented a universal 'test-and-treat' strategy (Option B+) to prevent HIV transmission from mothers to children, but many women fail to continue care, becoming 'defaulters' or 'lost-to-follow-up'.
  • The study analyzed data from community health workers (CHWs) in these countries, highlighting their role in reconnecting defaulters with health services and the challenges they face, like patients providing false information to avoid being traced.
  • Findings underscore CHWs' critical role as intermediaries in healthcare, yet they often lack the necessary training to ensure patient confidentiality and respect, stressing a need for better support in navigating the complexities of patient compliance and care retention.

Article Abstract

Background: Malawi, Uganda, and Zimbabwe have recently adopted a universal 'test-and-treat' approach to the prevention of mother-to-child transmission of HIV (Option B+). Amongst a largely asymptomatic population of women tested for HIV and immediately started on antiretroviral treatment (ART), a relatively high number are not retained in care; they are labelled 'defaulters' or 'lost-to-follow-up' patients.

Methods: We draw on data collected as part of a study looking at ART decentralization (Lablite) to reflect on the spaces created through the instrumentalization of community health workers (CHWs) for the purpose of bringing women who default from Option B+ back into care. Data were collected through semi-structured interviews with CHWs who are designated to trace Option B+ patients in Uganda, Malawi and Zimbabwe.

Findings: Lost to follow up women give a range of reasons for not coming back to health facilities and often implicitly choose not to be traced by providing a false address at enrolment. New strategies have sought to utilize CHWs' liminal positionality - situated between the experience of living with HIV, having established local social ties, and being a caretaker - in order to track 'defaulters'. CHWs are often deployed without adequate guidance or training to protect confidentiality and respect patients' choice.

Conclusions: CHWs provide essential linkages between health services and patients; they embody the role of 'extension workers', a bridge between a novel health policy and 'non-compliant patients'. Option B+ offers a powerful narrative of the construction of a unilateral 'moral economy', which requires the full compliance of patients newly initiated on treatment.

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Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5796350PMC
http://dx.doi.org/10.1186/s12913-017-2826-7DOI Listing

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