Acceptance or Despair? Maternal Adjustment to Having a Child Diagnosed with Autism.

J Autism Dev Disord

Center for Health and Community, University of California, San Francisco, 3333 California Street, San Francisco, CA, 94118, USA.

Published: June 2018

Psychological adjustment to having one's child diagnosed with an autism spectrum disorder has important implications for a parent's mental health. In a longitudinal study, we examined the association between maternal adjustment to the diagnosis and measures of distress and well-being in 90 mothers of children with autism (baseline and 18 months). We used a novel 30-item scale "Adjustment to the Diagnosis of Autism." Factor analysis identified three dimensions of adjustment: acceptance, self-blame, and despair. Acceptance appeared to be a protective response, as it was associated with lower depressive symptoms, cross-sectionally and over time. Conversely, caregivers with increasing levels of self-blame and despair about the diagnosis over 18 months had worsening of mental health and satisfaction with life during this period.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6347022PMC
http://dx.doi.org/10.1007/s10803-017-3450-4DOI Listing

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