In May 2013 and March 2015, actress Angelina Jolie wrote in the about her choice to undergo preventive surgery. In her two op-eds, she explained that - as a carrier of the BRCA1 gene mutation - preventive surgery was the best way to lower her heightened risk of developing breast and ovarian cancer. By applying a digital methods approach to BRCA-related tweets from 2013 and 2015, before, during, and after the exposure of Jolie's story, this study maps and interprets Twitter discursive dynamics at two time points of the BRCA Twitter stream. Findings show an evolution in curation and framing dynamics occurring between 2013 and 2015, with individual patient advocates replacing advocacy organizations as top curators of BRCA content and coming to prominence as providers of specialist illness narratives. These results suggest that between 2013 and 2015, Twitter went from functioning primarily as an organization-centered news reporting mechanism, to working as a crowdsourced specialist awareness system. This article advances a twofold contribution. First, it points at Twitter's fluid functionality for an issue public and suggests that by looking at the life story-rather than at a single time point-of an issue-based Twitter stream, we can track the evolution of power roles underlying discursive practices and better interpret the emergence of non-elite actors in the public arena. Second, the study provides evidence of the rise of activist cultures that rely on fluid, non-elite, collective, and individual social media engagement.
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http://dx.doi.org/10.1177/2056305117733224 | DOI Listing |
JMIR Infodemiology
December 2024
Department of Computer Science, University of Saskatchewan, Saskatoon, SK, Canada.
Background: Understanding advocacy strategies is essential to improving dementia awareness, reducing stigma, supporting cognitive health promotion, and influencing policy to support people living with dementia. However, there is a dearth of evidence-based research on advocacy strategies used to support dementia awareness.
Objective: This study aimed to use posts from X (formerly known as Twitter) to understand dementia advocacy strategies during World Alzheimer's Awareness Month in September 2022.
VLDB J
December 2024
University of Salzburg, Salzburg, Austria.
We provide efficient support for applications that aim to continuously find pairs of similar sets in rapid streams, such as Twitter streams that emit tweets as sets of words. Using a sliding window model, the top- result changes as new sets enter the window or existing ones leave the window. Specifically, when a set arrives, it may form a new top- result pair with any set already in the window.
View Article and Find Full Text PDFSoc Sci Med
October 2024
Department of Neuroscience, School of Translational Medicine, Monash University, Melbourne, Victoria, Australia. Electronic address:
Social media (SM) is increasingly utilised to disseminate mental health (MH) public service announcements (PSAs) and campaigns, connecting the public with support or resources. However, the effectiveness of MH campaigns/PSAs is often overlooked, and actions following exposure are rarely measured. We aimed to i) systematically review research on MH campaigns/PSAs disseminated via SM to determine their efficacy in eliciting engagement, help-seeking/behavioural change and ii) identify components that may facilitate engagement, help-seeking/behavioural change.
View Article and Find Full Text PDFFront Psychol
April 2024
Center for Design Research, Stanford University, Stanford, CA, United States.
COVID-19-motivated social distancing made online concerts common practice in 2020 and 2021, with millions logging into streaming sites to see their favorite artists perform in realtime. For some fans, watching alone at home may have been enough, but concert-concurrent surges of social media activity suggest many virtual performance attendees are doing more. To understand why fans would turn their attention from these precious performance streams to social media, we explored Twitter engagement during four live streamed concerts performed by the Kpop group BTS in 2021.
View Article and Find Full Text PDFPNAS Nexus
March 2024
Sloan School of Management, Massachusetts Institute of Technology, Cambridge, MA 02142, USA.
There is considerable concern about users posting misinformation and harmful language on social media. Substantial-yet largely distinct-bodies of research have studied these two kinds of problematic content. Here, we shed light on both research streams by examining the relationship between the sharing of misinformation and the use of harmful language.
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