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Prognostic uncertainty in multiple sclerosis: A concept analysis.
J Clin Nurs
February 2023
University of Missouri - Kansas City, Kansas City, MO, USA.
Aim: To report an analysis of the concept of prognostic uncertainty in patients with multiple sclerosis (MS).
Background: The complexity and ambiguity involved in a diagnosis of MS lead to the occurrence of prognostic uncertainty among patients. A concept analysis is presented that analyses what prognostic uncertainty means to those experiencing the transition between relapsing-remitting multiple sclerosis and secondary progressive multiple sclerosis.
"Progressive dwindling" or "terminal decline" and end of life care.
BMJ
October 2017
King's College London, School of Population Health Sciences, London WC2R 2LS, UK.
Formative care is needed for "progressive dwindling".
BMJ
October 2017
City, University of London, London EC1V 0HB, UK.
Progressive Dwindling in Multiple Sclerosis: An Opportunity to Improve Care.
PLoS One
July 2017
Centre for Neuroinflammation and Neurodegeneration, Division of Brain Sciences, Department of Medicine, Imperial College London, London, United Kingdom.
Introduction: In the general ageing population, 40% of deaths occur following a prolonged trajectory of "progressive dwindling," characterised by chronic accumulation of disability and frailty, and associated with increased dependency and reduced reserves. Those who progressively dwindle are poorly catered for by current healthcare systems and would benefit from a coordinated approach to their medical and social care, known as formative care. People with multiple sclerosis (pwMS) may be more likely to progressively dwindle, and may be appropriate targets for formative care pathways.
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