AI Article Synopsis
- - The study aimed to create a transitional care checklist for healthcare providers to help manage the care of children with chronic rheumatologic diseases and their families during transitional phases.
- - A multi-step approach involving expert panels and surveys was used to refine the checklist, ultimately achieving at least 80% agreement on 37 of the 38 items across diverse age groups and transition phases.
- - The final checklist is intended for use by health professionals caring for adolescents aged 12 and older, with potential applicability to other chronic conditions, and includes recommendations for future research.
Article Abstract
Objectives: To design a transitional care checklist to be used by and facilitate the work of health professionals in providing transitional care for children with a chronic rheumatologic disease and their families.
Methods: A Delphi-like study among an international expert panel was carried out in four steps: (1) a working group of 6 specialists established a draft; (2) a web-survey among a panel of international experts evaluated it; (3) a 2-day consensus conference with an expert panel discussed items not reaching agreement; (4) a web-survey among the panel of international experts with the list of reformulated items.
Results: The first draft of the checklist included 38 items in 3 phases of transition and 5 age groups. Thirty-three international experts evaluated the checklist reaching≥80% agreement for 26 items and ≤80% for 12. The consensus conference of 12 experts discussed and redefined the 12 items. Twenty-five international experts filled out the web-survey and all items reached a minimum of 80% agreement except one. The final checklist was reached.
Conclusions: This Delphi-like study defined what themes should be included and at what age they need to be addressed with patients with a chronic rheumatology disease and their families during transition. This checklist reached a strong international and interdisciplinary consensus while examining transition in a broad way. It should now be spread widely to health professionals to be used by all those who care for adolescents aged≥12 years at times of transition. It could be transposed to most chronic conditions. Recommendations for further research are given.
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| http://dx.doi.org/10.1016/j.jbspin.2017.09.003 | DOI Listing |
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