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http://dx.doi.org/10.1016/j.cardfail.2017.08.453 | DOI Listing |
J Spec Pediatr Nurs
July 2019
Faculty of Science, Athena Institute, VU University, Amsterdam, The Netherlands.
Purpose: Last decennia remarkable advances have been made in decreasing the mortality rate of children with congenital diaphragmatic hernia (CDH), resulting in a relatively growing patient group with long-term complications and complex care needs. These consequences have a huge impact on the quality of life of both children and their families. To provide practical recommendations for improving the quality of care for this patient group, the present study sought to obtain insights into the experiences and needs of parents with a child with CDH.
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January 2005
General, Visceral and Transplantation Surgery, Experimental Surgery and Regenerative Medicine, Charité-Campus Virchow, University Medicine Berlin, Berlin, Germany.
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