Oncology healthcare providers have an obligation to support cancer survivors, not just during active treatment, but also long after they have completed therapy. By providing survivorship care education and establishing programs using evidence-based practice, the specific needs and resources required to aid survivors in this new transition and journey can be identified. Survivors need to be guided, informed, and have their unique needs addressed.
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Roadmap to advance therapeutics for -related disorder: a patient organization perspective from SynGAP Research Fund.
Ther Adv Rare Dis
January 2025
SynGAP Research Fund, 2856 Curie Pl., San Diego, CA 92122, USA.
-related disorder (SRD) is a developmental and epileptic encephalopathy caused by a disruption of the gene. At the beginning of 2024, it is one of many rare monogenic brain disorders without disease-modifying treatments, but that is changing. This article chronicles the last 5 years, beginning when treatments for SRD were not publicly in development, to the start of 2024 when many SRD-specific treatments are advancing.
View Article and Find Full Text PDFHer, His, and their journey with endometriosis: a qualitative study.
Front Glob Womens Health
December 2024
School of Social Work, Ariel University, Givatayim, Israel.
Background: Endometriosis, impacting roughly 10% of reproductive-age women and girls globally, presents diagnostic challenges that can cause significant delays between symptom onset and medical confirmation. The aim of the current study was to explore the experience of women with endometriosis as well as that of their partners, from pre-diagnosis to diagnosis to post-diagnosis.
Methods: In-depth semi-structured interviews were conducted with 10 couples coping with endometriosis.
A Qualitative Model Demonstrating the Adaptation of Amphibians to Semi-Arid and Arid Habitats: Comparing the Green Toad (Pallas, 1771) and (Camerano, 1882).
Animals (Basel)
November 2024
MIGAL-Galilee Research Institute, P.O. Box 831, Kiryat Shmona 1101602, Israel.
In this brief article, the green toad () and the Levant water frog () were compared to better understand the adaptations needed by amphibians, specifically the green toad, to survive in arid regions and to inhabit a wide range of habitats. The information mainly comes from data gathered in Israel, a nation experiencing a shift from Mediterranean to desert ecosystems where both amphibian species can be found. Using these data, a qualitative model is put forward that showcases the differences between these two amphibians and illustrates how the green toad has adapted to arid environments.
View Article and Find Full Text PDF[Exploring Traumatic Experiences and Posttraumatic Growth among Korean Veterans: A Photovoice Study].
J Korean Acad Nurs
November 2024
Graduate School, College of Nursing, Seoul National University, Seoul, Korea.
Purpose: This study aimed to explore traumatic experiences and posttraumatic growth among Korean veterans.
Methods: A qualitative study was conducted using photovoice. Purposive sampling strategies yielded five veterans who had experienced traumatic events.
Irish Prostate Cancer Outcomes Research (IPCOR) registry: cohort profile.
BMJ Open
December 2024
UCD School of Medicine and UCD Conway Institute, University College Dublin, Dublin, Ireland.
Purpose: To describe the Irish Prostate Cancer Outcomes Research (IPCOR) registry. The cohort was collected to inform and improve the prostate cancer journey of men in Ireland.
Participants: Established in 2015, IPCOR was a unique large-scale prospective cohort study registering men with prostate cancer in Ireland.
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