While dementia caregivers are regarded as a population with high unmet needs, there is little consensus as to how caregivers' needs should be conceptualized and measured. This article describes how dementia caregivers' needs are currently assessed in the scientific literature with the goal of suggesting guidelines for the enhancement of future measurement of caregiver needs. A review of 26 articles identified overarching themes within measurement approaches including variation in methodological rigor, proxy indicators of need, dual needs assessment of caregiver and person with dementia (PWD), and third-party needs assessment. We recommend future research dedicate theoretical attention to the conceptualization and classification of caregivers' needs to build a stronger foundation for measurement. The measurement development process should capitalize on mixed-methodology and follow instrument development and validation guidelines set forth by measurement theory. Reliable and valid instruments are essential to developing services and policies that address dementia caregivers' needs.
Download full-text PDF |
Source |
|---|---|
| http://dx.doi.org/10.1177/0733464817705959 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Use of the Adaptive Behaviour Dementia Questionnaire in a Down Syndrome Specialty Clinic.
J Integr Neurosci
January 2025
Down Syndrome Program, Division of Medical Genetics and Metabolism, Department of Pediatrics, Massachusetts General Hospital, Boston, MA 02114, USA.
Objective: To study the use of a dementia screening tool in our clinic cohort of adults with Down syndrome.
Study Design: A retrospective chart review of patients with Down syndrome was conducted to follow the use of the Adaptive Behaviour Dementia Questionnaire (ABDQ) in a dementia screening protocol. The ABDQ results for patients aged 40 years and older at a Down syndrome specialty clinic program were assessed.
The Effects of Exergaming on the Depressive Symptoms of People With Dementia: A Systematic Review and Meta-Analysis.
J Clin Nurs
January 2025
School of Nursing and Midwifery, La Trobe University, Melbourne, Victoria, Australia.
Background: Depressive symptoms are common among people with dementia (PWD). Exergaming consisting of combined cognitive and physical training in gaming is increasingly used to alleviate their depressive symptoms in research. With its potential synergistic neurobiological and psychosocial effects on reducing depressive symptoms among PWD, this review aimed to understand its effectiveness and contents.
View Article and Find Full Text PDFSupporting a Family Member with Dementia to Live at Home: The Experiences of Caregivers.
Healthcare (Basel)
January 2025
Institute of Mental Health, University of Nottingham, Nottingham NG7 2RD, UK.
Background: In the United Kingdom, specialist teams managing crises in dementia make efforts to reduce inpatient admissions by supporting people to live for longer in their own homes. However, fluctuations in the health and social circumstances of both the person with dementia and/or their family caregiver can lead to 'crisis': a breakdown in home care often leading to inpatient admissions. At this point, a team managing crises in dementia (TMCD) might become involved.
View Article and Find Full Text PDFSocial representations of dementia. A qualitative inquiry into perspectives of people with dementia, professionals, and informal caregivers.
Dementia (London)
January 2025
Department of Philosophy and Cultural Heritage, Ca' Foscari University of Venice, Italy.
Using a theoretical framework that underscores the social dimension of meaning-making processes, this study delved into the social representations of dementia in the Italian context and the personal meanings expressed by three distinct groups of participants. The study involved ninety-two episodic interviews with people living with dementia and those who had provided care as professionals or informal caregivers. The collected data underwent various types of analysis.
View Article and Find Full Text PDFEcopsychosocial strategies for the self-exploration of professional family caregivers to manage the behavioural and psychological symptoms of Alzheimer patients in Iran: a qualitative study.
BMJ Open
January 2025
Medical Informatics Research Center, Institute of Futures Studies in Health, Kerman University of Medical Sciences, Kerman, Iran
Objective: The aim of the present study was to explore the experiences and viewpoints of professional family caregivers in the management of behavioural and psychological symptoms of dementia (BPSDs) to identify the ecopsychosocial strategies applied by them.
Design: Qualitative study.
Setting: Kerman, Iran.
Want AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!