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The Potential of Patient Stories to Advance Birth Equity.
Qual Manag Health Care
January 2025
Philip R. Lee Institute for Health Policy Studies, University of California San Francisco, San Francisco, CA.
A human-centered approach for sharing patient experiences through digital storytelling: a research through design study.
Des Sci
October 2024
College of Design, North Carolina State University, Raleigh, NC, USA.
This article outlines a human-centered approach to developing digital patient stories, for sharing their experiences in health care, while preserving patient and others' privacy. Employing a research-through-design approach, the study proposes a design solution using visualization and digital storytelling to document patients' and families' experiences and emotions, as well as their interactions with healthcare professionals in the postnatal unit. By transforming selected observational data into animated stories, this approach has the potential to elicit empathy, stimulate stakeholder engagement, and serve as a practical training tool for clinicians.
View Article and Find Full Text PDF[Continuity of care and the power of narrative in perinatal psychotrauma].
Soins
January 2025
Laboratoire de psychologie clinique, psychopathologie, psychanalyse, Université Paris Cité, 71 avenue Édouard-Vaillant, 92100 Boulogne-Billancourt, France; Maison de Solenn, Hôpital Cochin, AP-HP, 97 boulevard de Port-Royal, 75014 Paris, France; CESP, Faculté de médecine, Université Paris-Sud, Hôpital Paul-Brousse, 16 avenue Paul-Vaillant-Couturier, 94807 Villejuif cedex, France.
With the help of clinical vignettes, the authors present their approach to maternity care for exiled pregnant women at risk of psychotrauma. They emphasize the importance of co-constructing a life story to bridge discontinuities, and of working as a team with continuity to avoid further breakdowns. At stake is the birth of a baby, which may suffer from psychotraumatic sharing without adequate support.
View Article and Find Full Text PDFAssessment of the thymus in fetuses prior to spontaneous preterm birth using functional MRI.
Early Hum Dev
January 2025
Department of Women and Children's Health, St Thomas' Hospital, King's College London, London, UK; Department of Perinatal Imaging, St Thomas' Hospital, King's College London, London, UK.
Objectives: The aim of this study was to utilise T2* relaxometry (an indirect method of quantifying tissue oxygenation) to assess the fetal thymus in uncomplicated pregnancies throughout gestation and in a cohort of fetuses that subsequently deliver very preterm.
Methods: A control group of participants with low-risk pregnancies were recruited and retrospectively excluded if they developed any pregnancy related complications after scanning. Participants were recruited who were deemed to be at very high risk of delivery prior to 32 weeks' gestation and retrospectively excluded if they did not deliver prior to this gestation.
Exploring childbirth experiences through a Salutogenic lens.
Midwifery
December 2024
School of Community Health and Midwifery, University of Central Lancashire, Preston, Lancashire PR1 2HE, UK. Electronic address:
Women's experiences of childbirth have generally been considered through a pathological lens. Wider sociological arguments associated with salutogenesis stress the need to depict health on a continuum to help understand what constitutes positive health as well as ill-health. Similarly, to fully understand women's experiences of childbirth, it needs to be explored on a continuum, considering salutogenic and pathogenic factors.
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