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http://dx.doi.org/10.1093/neuros/nyx007 | DOI Listing |
J Natl Cancer Inst
January 2025
Department of Pediatrics, Division of Hematology-Oncology, Montreal Children's Hospital, McGill University Health Centre, Montreal, QC H4A5S9, Canada.
BMJ Open
January 2025
Alison Gregory Consultancy, Bristol, UK.
Purpose: Among health researchers, there is a growing appreciation of the importance of the involvement of service users and members of the public. This recognition has not only resulted in involvement guidelines and improved research ethics but also an increasing use of consensus processes with service users and members of the public to determine research priorities and questions and to agree outcomes to be measured in intervention studies. There is, however, limited advice about how to safely involve survivors of violence and abuse in consensus-based studies.
View Article and Find Full Text PDFJ Pediatr Urol
January 2025
Department of Pediatric Urology and Pediatric Surgery, Hôpital Pellegrin-Enfants, University Hospital Bordeaux, Bordeux, France. Electronic address:
J Med Internet Res
January 2025
Crisis Text Line, New York, NY, United States.
We appreciate Reierson's thoughtful commentary on our 2019 paper, which described our experiences, ethical process, judgment calls, and lessons from a 2016-2017 data-sharing pilot between Crisis Text Line and academic researchers. The commentary raises important questions about the ethical conduct of health research in the digital age, particularly regarding informed consent, potential conflicts of interest, and the protection of vulnerable populations. Our article focused specifically on the noncommercial use of Crisis Text Line data for research purposes, so we restrict our reply to points relevant to such usage.
View Article and Find Full Text PDFActa Paediatr
January 2025
Division of Neonatology, Department of Pediatrics, University of Minnesota, Minneapolis, Minnesota, USA.
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