Questionnaire development involves rigorous testing to ensure reliability and validity. Due to time and cost constraints of developing new questionnaires, researchers often adapt existing questionnaires to better fit the purpose of their study. However, the effect of such adaptations is unclear. We conducted cognitive interviews as a method to evaluate the understanding of original and adapted questionnaire items to be applied in a future study. The findings revealed that all subjects (a) comprehended the original and adapted items differently, (b) changed their scores after comparing the original to the adapted items, and (c) were unanimous in stating that the adapted items were easier to understand. Cognitive interviewing allowed us to assess the interpretation of adapted items in a useful and efficient manner before use in data collection.
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http://dx.doi.org/10.1177/0193945916678212 | DOI Listing |
Alzheimers Dement
December 2024
University of Michigan, Ann Arbor, MI, USA.
Background: Approaches to caregiving interventions are often "one-size-fits-all", yet family caregivers for individuals with dementia have unique caregiving styles with which they enact daily care. Mixed-methods work by this team identified 5 distinct caregiving style profiles that vary in: orientation toward oneself or the care partner, adaptability, understanding of dementia, emotional expression, and behavioral management. This study seeks to develop a person-centered assessment of caregiving style such that interventions and services can be targeted to caregivers' unique styles of care.
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December 2024
University of Queensland, Brisbane, QLD, Australia.
Background: Dementia is highly stigmatised, misperceived as a mental illness, and considered a normal part of ageing by people from culturally and linguistically diverse backgrounds in Australia. There is a lack of valid and reliable scale to measure their dementia attitudes. This study aimed to cross-culturally translate and validate a dementia attitudes scale in Arabic, Vietnamese, Chinese, and Greek communities as they represent the main languages spoken throughout Western Sydney, Australia.
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December 2024
Cleveland Clinic Lou Ruvo Center for Brain Health, Las Vegas, NV, USA.
Background: Up to 40% of current AD cases may have been preventable through protective factors, such as physical and cognitive activities, preventing neurodegeneration. Reserve, resilience, and resistance are key concepts in cognitive neuroscience of aging, and they share common adaptive mechanisms. In this paper we propose a development and validation of a new scale, called dynamic Neurocognitive Adaptation (dNA).
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December 2024
Institute for Advanced Medical Research and Training, College of Medicine, University of Ibadan, Ibadan, Oyo State, Nigeria.
Background: Majority of people living worldwide live in low- and middle- income countries, including sub-Saharan Africa (SSA). Most cognitive assessment batteries for Alzheimer's Disease(AD), are developed in high income countries (HICs), where most international dementia collaborations and data originate. The African Dementia Consortium (AfDC) is a new scientific collaboration network currently participating in the Recruitment and Retention for Alzheimer's Disease Diversity Genetic Cohorts in the Alzheimer's Disease Sequencing Project (READD-ADSP).
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December 2024
Premedical Science, College of Medicine, Chosun University, Gwangju, Korea, Republic of (South).
Background: Boosting shared decision-making (SDM) for individuals with dementia is a critical aspect of patient-centered care. This collaborative approach respects the autonomy and dignity of patients, even when they face challenges in communication or decision-making due to their medical condition. Understanding patients' values and preferences may be central to a successful SDM process.
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