Background: Autologous ear reconstruction for microtia is a complex, multi-stage procedure. The success of the procedure is dependant on how the patient perceives the outcomes of surgery and their overall experience. Patient reported measures are therefore crucial to developing the technique and improving the patient journey.
Aim: The aim of this study was to use two reproducible patient reported outcome tools as an objective measure of microtia reconstructive surgery.
Methods: A retrospective cohort study was performed at Great Ormond Street Hospital (GOSH), London and the Royal Hospital for Sick Children (RHSC), Edinburgh. Two questionnaires were posted to patients with congenital microtia who underwent an autologous ear reconstructive procedure. The first questionnaire - designed by the authors at Great Ormond Street Hospital - measured the patient's perspectives of: ear appearance, the individual aesthetic units and the donor site. The second questionnaire - created by the authors at the Royal Hospital for Sick Children - collected demographic information; and asked general questions regarding ear surgery including psychosocial considerations and satisfaction scores of individual aesthetic units.
Results: The majority of patients were very satisfied with their reconstructed ear (83% at GOSH and 85% at RHSC). High patient satisfaction scores were reported for the lobe of ear and size of the ear. Low satisfaction scores were reported for the antitragus and projection of ear.
Conclusion: The measures used in this study provide an objective assessment of patient reported experience and outcome that in the future can be used as a means of targeted quality improvement and to benchmark care nationally.
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http://dx.doi.org/10.1016/j.bjps.2016.10.023 | DOI Listing |
ACR Open Rheumatol
January 2025
Duke University and Duke Clinical Research Institute, Durham, North Carolina.
Objective: The objective of this study was to evaluate the preliminary effectiveness of an electronic pill bottle with automated reminders on hydroxychloroquine (HCQ) adherence in children with pediatric systemic lupus erythematosus (pSLE).
Methods: This was a self-controlled, open label, direct-to-family pilot trial. Children with pSLE treated with HCQ were recruited from the Childhood Arthritis and Rheumatology Research Alliance Registry.
Orthop Surg
January 2025
Senior Department of Orthopedics, The Fourth Medical Center of PLA General Hospital, Beijing, China.
Objective: Robotic-assisted total knee arthroplasty (TKA) is a novel orthopedic technique. The workflow of robotic-assisted TKA is quite different from that of traditional manual TKA and may result incompletely different resection parameters. Understanding these parameters may help surgeons better perform robotic-assisted TKA.
View Article and Find Full Text PDFHead Neck
January 2025
Department of Otolaryngology, University of California, Irvine, Chao Family Comprehensive Cancer Center, Orange, California, USA.
Purpose: Blood-borne, cell-free DNA has been proposed as a means of individualizing the management of human papillomavirus (HPV)-positive oropharyngeal carcinoma.
Methods And Materials: This study was designed based on the Preferred Reporting Items for Systematic Review and Meta-Analysis Protocols (PRISMA-P) statement. A comprehensive literature search of peer-reviewed publications from January 2013 to January 2024 was undertaken to identify prospective studies pertaining to the use of circulating HPV-DNA for oropharyngeal carcinoma.
ACR Open Rheumatol
January 2025
University of Udine and University Hospital Santa Maria della Misericordia, Udine, Italy.
Objective: We aimed to investigate the remission rate and disease duration in idiopathic or post-cardiac injury pericarditis and risk factors for disease duration and anti-interleukin-1 (IL-1) agent discontinuation.
Methods: This was a multicenter, longitudinal, observational study including 370 patients (51.4% female).
Arterioscler Thromb Vasc Biol
January 2025
Department of Pediatrics, Division of Pediatric Infectious Diseases, Guerin Children's, Cedars-Sinai Medical Center, Los Angeles, CA.(P.K.J., M.A., M.N.R.).
The intestinal microbiota influences many host biological processes, including metabolism, intestinal barrier functions, and immune responses in the gut and distant organs. Alterations in its composition have been associated with the development of inflammatory disorders and cardiovascular diseases, including Kawasaki disease (KD). KD is an acute pediatric vasculitis of unknown etiology and the leading cause of acquired heart disease in children in the United States.
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