Global health research partnerships are increasingly taking the form of consortia that conduct programs of research in low and middle-income countries (LMICs). An ethical framework has been developed that describes how the governance of consortia comprised of institutions from high-income countries and LMICs should be structured to promote health equity. It encompasses initial guidance for sharing sovereignty in consortia decision-making and sharing consortia resources. This paper describes a first effort to examine whether and how consortia can uphold that guidance. Case study research was undertaken with the Future Health Systems consortium, performs research to improve health service delivery for the poor in Bangladesh, China, India, and Uganda. Data were thematically analysed and revealed that proposed ethical requirements for sharing sovereignty and sharing resources are largely upheld by Future Health Systems. Facilitating factors included having a decentralised governance model, LMIC partners with good research capacity, and firm budgets. Higher labour costs in the US and UK and the funder's policy of allocating funds to consortia on a reimbursement basis prevented full alignment with guidance on sharing resources. The lessons described in this paper can assist other consortia to more systematically link their governance policy and practice to the promotion of health equity.
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http://dx.doi.org/10.1016/j.socscimed.2016.11.039 | DOI Listing |
Biology (Basel)
December 2024
Consiglio per la Ricerca in Agricoltura e l'Analisi dell'Economia Agraria (CREA), Research Centre for Animal Production and Aquaculture, Via Salaria 31, 00015 Monterotondo, Italy.
Lipizzan is a famous horse breed dating back to 1580 when the original stud of Lipica was established by the Hasburg Archduke Charles II. Currently, the Italian State Stud of Lipizzan Horses (ASCAL) is a conservation nucleus managed through strict mating rules where mitochondrial DNA sequences are used to verify the correct assignment of mares to a historical pedigree maternal lineage. Here, we analyzed the D-loop sequences of Lipizzan horses from the ASCAL in Monterotondo (Rome, Italy) in order to confirm their pedigree assignment to known female founder families.
View Article and Find Full Text PDFRev Panam Salud Publica
December 2024
The University of the West Indies at Cave Hill Bridgetown, Saint Michael Barbados The University of the West Indies at Cave Hill, Bridgetown, Saint Michael, Barbados.
The CaribData project, funded by the Inter-American Development Bank and implemented by The University of the West Indies, aims to enhance data-handling, -sharing and reuse capabilities in the Caribbean. The project focuses on four main objectives: developing an online data-handling platform, creating a sustainable training and mentoring program, launching a data communication initiative and conducting data availability audits. To evaluate its progress, CaribData integrates two implementation science frameworks, RE-AIM (for Reach, Effectiveness, Adoption, Implementation, Maintenance) and the Consolidated Framework for Implementation Research.
View Article and Find Full Text PDFGlob Public Health
December 2025
Health Sciences, Wilfrid Laurier University, Waterloo, Canada.
Indigenous ways of knowing, being and doing are based on embodied sovereignty, relationality and countless generations of knowledge sharing. We call for in which Indigenous knowledge systems are recognised and valued in research-related contexts. We draw attention to how colonial knowledge systems silence, delegitimise and devalue specific knowers and ways of knowing, being and doing - through truth telling.
View Article and Find Full Text PDFLancet Rheumatol
December 2024
Department of Psychology and Health Studies, University of Saskatchewan, Saskatoon, SK S7N 5A5, Canada. Electronic address:
Conserv Biol
December 2024
Heiltsuk (Haíɫzaqv) Integrated Resource Management Department, Bella Bella, British Columbia, Canada.
The importance of Indigenous (and local) knowledge and governance systems for addressing social and ecological crises is increasingly recognized. Unfortunately, attempts to incorporate Indigenous knowledge into Western approaches, often without the full leadership, consent, and participation of the peoples holding those knowledges, can cause harm and can constitute extractive activities. However, there remains considerable potential in collaborations bringing together multiple perspectives and knowledges.
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