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New onset refractory status epilepticus: Long-term outcomes beyond seizures.
Epilepsia
January 2025
Department of Clinical Neurological Sciences, Schulich School of Medicine and Dentistry, Western University, London, Ontario, Canada.
We propose and prioritize important outcome domains that should be considered for future research investigating long-term outcomes (LTO) after new onset refractory status epilepticus (NORSE). The study was led by the international NORSE Institute LTO Working Group. First, literature describing the LTO of NORSE survivors was identified using a PubMed search and summarized to identify knowledge gaps.
View Article and Find Full Text PDFFactors influencing evidence-based cardiovascular disease prevention programming in rural African American communities: a community-engaged concept mapping study.
Implement Sci Commun
January 2025
Center for Health Equity Research, School of Medicine, University of North Carolina at Chapel Hill, 333 South Columbia Street, MacNider Hall Ste 323, Chapel Hill, NC, 27599, USA.
Background: African Americans experience cardiovascular disease (CVD) disparities, and the burden is greatest in the rural south. Although evidence-based CVD prevention and management programs have been tailored to this context, implementation has been limited and not sustained long-term. To understand how to implement and sustain evidence-based CVD programs at scale, we must explore the perspectives of organizations serving rural African American communities and situate findings within foundational Implementation Science frameworks.
View Article and Find Full Text PDF[Exploring the voice of patients: Mapping their experience following care in an integrated health area].
J Healthc Qual Res
January 2025
Unidad de Calidad Asistencial, Área 1 Murcia-Oeste. Hospital Clínico Universitario Virgen de la Arrixaca, El Palmar, Murcia, España.
Background And Aim: Measuring patient-reported experience measures (PREMs) is essential for the continuous improvement of quality. This study aims to assess the quality perceived by patients in the key care processes of an integrated health area measuring PREM elements, with the goal of identifying opportunities for improvement.
Methods: The research was conducted in the first half of 2023 within a Spanish integrated health area, analysing five key healthcare processes: Primary Care, Emergency Services, Hospitalisation, Consultations, and Surgery.
Symptom appraisal and help-seeking before a cancer diagnosis during pregnancy: a qualitative study.
Br J Gen Pract
January 2025
University of Surrey Faculty of Health and Medical Sciences, School of Health Sciences, Guildford, United Kingdom.
Background Estimated incidence of cancer diagnosis during or shortly after pregnancy is 1 in 1,000 women. Pregnancy can impact symptom appraisal and help-seeking for symptoms subsequently diagnosed as cancer. Little is known about the pathway to cancer diagnosis in pregnancy or delays that women can encounter.
View Article and Find Full Text PDFA new approach to children's work that prioritises resilience, well-being and agency: emerging findings from a 'cash plus' intervention in Bangladesh.
BMJ Paediatr Open
January 2025
BRAC Institute of Governance and Development, Dhaka, Bangladesh.
Background: Criticism of mainstream approaches to child labour is widespread and well-established. The Child Labour Action Research in South and Southeast Asia (CLARISSA) Cash Plus pilot sought to address these critiques through an innovative programme that prioritised the development of household resilience and well-being, and through increasing household capacity to make alternative choices around children's work.
Research: Funded by the UK's Foreign, Commonwealth and Development Office, this pilot delivered unconditional cash transfers (UCTs) and needs-based case management and community mobilising across an entire slum neighbourhood in Dhaka, Bangladesh.
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