Pilot of the Chronic Disease Self-Management Program for Adolescents and Young Adults With Sickle Cell Disease.

J Adolesc Health

Department of Pediatrics, James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio; Division of Adolescent Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio.

Published: January 2017

AI Article Synopsis

  • The study assessed the effectiveness of the Stanford Chronic Disease Self-Management Program (CDSMP) in helping adolescents and young adults with sickle cell disease (SCD) enhance their self-management skills.
  • Twenty-two participants aged 16-24 completed various assessments before, after, and several months post-intervention, showing significant improvements in self-efficacy, although the effect on patient activation diminished over time.
  • Despite a high satisfaction rate among participants, only 64% completed the program, highlighting the need for further research on the long-term feasibility and health outcomes of the CDSMP for this age group.

Article Abstract

Purpose: This study evaluated the feasibility of a group self-management intervention, the well-established Stanford Chronic Disease Self-Management Program (CDSMP), for adolescents and young adults (AYA) with sickle cell disease (SCD).

Methods: A total of 22 AYA participants with SCD, ages 16-24 years, completed self-efficacy and quality of life measures before the CDSMP, after, and 3 and 6 months later.

Results: This AYA cohort showed significant improvements in self-efficacy (primary outcome) after the intervention. Analyses of follow-up data revealed a medium effect of the CDSMP on patient activation 3 months post although this was not sustained. Participants were highly satisfied, but only 64% completed the program.

Conclusions: This study demonstrates that the CDSMP is acceptable and has the ability to improve self-efficacy. Additional research is needed to determine feasibility and evaluate health outcomes for AYA with SCD.

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Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5182081PMC
http://dx.doi.org/10.1016/j.jadohealth.2016.08.022DOI Listing

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