Objectives: To assess perceptions of illness severity and terminality in caregivers of advanced heart failure (HF) patients and how these perceptions influence utilization of palliative care and end-of life services.
Background: HF is a terminal disease; yet patients and caregivers do not understand the severity of HF or acknowledge disease terminality.
Methods: This study was conducted using a qualitative design with in-depth interviews and content analysis.
Results: Most caregivers did not understand the severity of HF (68%) or disease terminality (67%). Patients were more likely to receive services when their caregivers expressed an understanding of illness severity and/or terminality.
Conclusions: Inclusion of caregivers in discussions of goals of care, advance care planning, and palliative care and end-of-life services with patients and providers is imperative.
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| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5167641 | PMC |
| http://dx.doi.org/10.1016/j.hrtlng.2016.09.001 | DOI Listing |
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