Life-changing illness or experiencing a catastrophic injury changes one's outlook on life. This is a story of one case manager's journey.
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Patient Experiences and Prerequisites of Collaboration as Partners in Person-Centred Care: An Interview Study.
Nurs Open
January 2025
Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Aim: To explore what characterises communication and collaboration within a patient and professional partnership in outpatient care settings garnered from the experiences of persons living with long-term conditions.
Design: A qualitative descriptive study design.
Methods: Semi-structured individual interviews were conducted with 15 persons with long-term condition/s who experienced outpatient treatment or follow-up care.
Speaking Stoma: Creating a Communication Guide for People With an Ostomy.
Qual Health Res
December 2024
Department of Surgery and Perioperative Care, The University of Texas at Austin, Austin, TX, USA.
An ostomy is a life-changing procedure. Individuals who have ostomy surgery must adjust to changes post-operation, some of which involve changes to communication and managing social situations. The purpose of this project was to create an evidence-based communication guide for people with ostomies while transitioning to life after surgery and serve as a reference for the creation of communication guides for similar chronic illnesses.
View Article and Find Full Text PDFA journey through transitional care-family members' experiences post a life-threatening situation: A qualitative study.
Scand J Caring Sci
December 2024
Department of Health Sciences, Mid Sweden University, Ostersund, Sweden.
Background: Being a family member to someone who suffers from a serious illness can change one's perspectives about life. A sudden and severe illness can result in a demanding journey that involves acute admission to hospital, intensive care, post-care, and finally, returning home.
Aim: To describe the experience of staying beside a next of kin throughout the healthcare journey, from the onset of illness at home, to the intensive care unit, post-care, and returning home.
Plastic Resilience: Rethinking Resilience in Illness with Catherine Malabou.
J Med Philos
November 2024
Universidad Complutense de Madrid, Madrid, Spain.
Drawing on Catherine Malabou's notion of plasticity, this article argues for a conception of resilience as plastic. Resilience has proven an important concept in health care, describing how we manage life-changing illnesses. Yet, resilience is not without its critics, who suggest it neglects a political, social, or personal dimension in illness.
View Article and Find Full Text PDFExploring the Health-Related Quality of Life and the Lived Experience of Adolescents Following Invasive Meningococcal Disease.
Healthcare (Basel)
May 2024
Vaccinology and Immunology Research Trials Unit, Women's and Children's Health Network, Adelaide, SA 5006, Australia.
Background: Data on the health-related quality of life (HRQoL) for invasive meningococcal disease (IMD) survivors, particularly among adolescents and young adults (AYAs), are limited. This study aimed to investigate the in-depth experiences and impacts of IMD on AYAs.
Methods: Participants were recruited from two Australian states, Victoria and South Australia.
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