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"I have never felt so alone and vulnerable" - A qualitative study of bereaved people's experiences of end-of-life cancer care during the Covid-19 pandemic.
BMC Palliat Care
December 2024
Marie Curie Research Centre, Division of Population Medicine, School of Medicine, Cardiff University, Cardiff, UK.
Background: COVID-19 drastically affected healthcare services world-wide. In the UK, many cancer services were overwhelmed as oncology staff were reassigned, and cancer diagnoses and treatments were delayed. The impact of these pressures on end-of-life care for patients with advanced cancer and their relatives is not well understood.
View Article and Find Full Text PDFUnlocking Team Potential: Mastering Communication in Palliative Care.
Cureus
November 2024
Internal Medicine - Medicina 2, Unidade Local de Saúde do Alto Minho - Hospital Conde de Bertiandos, Ponte de Lima, PRT.
Effective communication is crucial in multidisciplinary teams (MDTs) within palliative care, where patient needs can be complex and multifaceted. This article examines the significance of communication in promoting collaborative, patient-centered care while addressing challenges such as professional jargon, hierarchical barriers, and the emotional strain associated with end-of-life care. Leadership plays a vital role in creating an environment of open dialogue, reducing hierarchical dynamics, facilitating conflict resolution, and supporting the emotional well-being of team members.
View Article and Find Full Text PDFBarriers and facilitators to caregiver comfort with health-related social needs data collection in the pediatric clinical setting.
Health Serv Res
December 2024
Clinical Futures and Policy Lab, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.
Objective: To identify barriers and facilitators to family-level comfort with health-related social needs (HRSN) data collection and documentation in the pediatric clinical setting.
Study Setting And Design: This qualitative study was nested within a pragmatic randomized controlled trial on social care integration in the pediatric clinical setting. We used a hybrid random-purposive strategy to sample 60 caregivers of pediatric patients ages 0-25 presenting at two primary care clinics and one emergency department affiliated with a large pediatric healthcare system between September 2022 and 2023.
Family members' experiences of surrogate decision-making in hospice care: A systematic review of qualitative studies.
Int J Nurs Stud
December 2024
Department of Nursing, West China Hospital, Sichuan University/West China School of Nursing, Sichuan University, Chengdu, China. Electronic address:
Background: Surrogate decision-makers play a key role in determining whether end-of-life patients receive hospice care. There is a need to better understand families' experiences of surrogate decision-making in hospice care for end-of-life patients to provide a basis for developing targeted interventions, such as decision support tools or counseling, to help family members navigate the decision-making process.
Aim: The aim was to analyze and synthesize global qualitative data on family members' experiences of surrogate decision-making regarding whether to receive hospice care for end-of-life patients.
The impact of psoriatic arthritis on quality of life: a systematic review.
Ther Adv Musculoskelet Dis
December 2024
Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences, Botnar Research Centre, Windmill Road, Oxford OX3 7HE, UK.
Background: Psoriatic arthritis (PsA) is a chronic inflammatory condition that can affect individuals of all ages. Patients may experience a range of physical and psychological issues.
Objective: To examine the impact of PsA on an individual's quality of life (QoL) and physical function.
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