Background: The increasing prevalence of dementia, including among rural veterans, highlights the improved outcomes possible for caregivers who receive effective support. However, providing these complex interventions in rural areas presents challenges. Internet-based and telephone-based caregiver support can potentially expand access to effective support.
Methods: We designed a multisite intervention for caregivers of veterans with dementia. Caregivers were stratified into 2 cohorts based on their use or nonuse of the Internet. Each cohort was then randomized to either a technology or telephone-delivered support group within each cohort. All groups had a care manager who monitored the 4- to 6-month multicomponent program of assessments, educational content, and skills training. Caregiver outcome measures included burden, anticipatory grief, depression, family conflict, and a desire to institutionalize the care recipient.
Results: The majority of comparative effectiveness outcomes were not different between caregivers receiving technology interventions versus those receiving telephone-delivered support. This was true for the 68% of caregivers using home Internet and the 32% nonusers, as well as the 53% rural versus 47% urban caregivers. For experienced Internet users, a meaningful difference in the Marwit Grief Inventory was noted for caregivers receiving Internet versus telephone support, particularly for the Isolation Subscale.
Conclusion: This study demonstrates the feasibility and acceptability of using a variety of modalities to deliver caregiver support to a group of largely older, rural, spousal caregivers of veterans with dementia. The potential for reducing isolation for caregivers capable of receiving this intervention through the Internet is a promising finding.
Download full-text PDF |
Source |
---|---|
http://dx.doi.org/10.1111/jrh.12195 | DOI Listing |
J Intellect Dev Disabil
March 2022
Pragmatic Health Ethics Research Unit, Institut de recherches cliniques de Montréal, Montréal, Canada.
Background: People with fetal alcohol spectrum disorder (FASD) and women who drink alcohol while pregnant can experience stigma, possibly exacerbated by stereotyped media portrayals.
Method: To understand experiences of FASD stakeholders and reactions to news coverage, we conducted twelve focus groups across three categories: (1) people with FASD; (2) caregivers; and (3) professionals. Themes were identified using .
J Intellect Dev Disabil
March 2022
Department of Educational Psychology, Université de Lorraine (2LPN: Laboratoire Lorrain de Psychologie and Neurosciences de la dynamique des comportements - EA 7489).
Background: The increased life expectancy of people with Down syndrome puts pressure on parents, who are usually the main caregivers but who find caring more difficult as they get older. The quality of the support provided by brothers and sisters depends on the intra-family relationships they build when growing up.
Methods: 121 adult siblings of people with Down syndrome completed a questionnaire on their perceptions of their childhood relationships.
J Intellect Dev Disabil
December 2021
Department of Philosophy, Social and Human Sciences and Education, University of Perugia, Perugia, Italy.
The Nisonger Child Behavior Rating Form (NCBRF) allows for the assessment of frequency and severity of challenging behaviours of individuals with ID with one combined rating. However, frequency and severity rating of challenging behaviours may be in disagreement. Therefore, the efficacy of frequency and severity independent ratings for each NCBRF item was investigated.
View Article and Find Full Text PDFJ Intellect Dev Disabil
December 2021
School of Physical and Occupational Therapy, Faculty of Medicine, McGill University, Montreal, Canada.
Background: Providing medical and dental care for adults with developmental disabilities requires specialised care that includes caregiver's perceptions of processes of care as integral to informing care delivery.
Method: We examined the reach and efficacy of a medical-dental clinic serving adults with developmental disabilities as part of a program evaluation in the community setting. Using the RE-AIM framework, we analysed caregivers' perceptions of the processes of care and associations with sociodemographic factors and stress and depression levels.
J Intellect Dev Disabil
September 2022
Universidad de los Andes, Chile, School of Psychology, and Millennium Institute for Caregiving Research (MICARE), Santiago, Chile.
Background: Given the importance of adaptive behaviour (AB) for the identification of intellectual disability and the design of intervention plans for people with Down syndrome (DS), this cross-sectional study explored AB in infants with DS, compared to infants with typical development (TD).
Unlabelled: we evaluated 60 infants (10-36 months) with ABAS-II (32 with DS, 28 with TD). Using the developmental trajectories method for data analysis, we compared AB between the two groups.
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!