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Operationalising a Haemophilia Gene Editing Lexicon for Practical Use.
Haemophilia
January 2025
Medicine and Pathology, Georgetown University, Washington, District of Columbia, USA.
Introduction: Gene editing therapies offer the possibility of substantial improvement in treatment and quality of life for people with haemophilia (PWH) in a landscape of dynamic therapeutic advancement. Developing a common and understandable language to discuss gene editing will be essential to ensure these treatments can be deployed in a safe and effective manner with fully informed and shared decision-making between healthcare professionals (HCPs) and PWH. A lexicon explaining and clarifying key concepts is one potential tool to address these aims.
View Article and Find Full Text PDFNavigating Dementia and Delirium: Balancing Identity and Interests in Advance Directives.
Nurs Philos
January 2025
Department of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
The moral authority of advance directives (ADs) in the context of persons living with dementia (PLWD) has sparked a multifaceted debate, encompassing concerns such as authenticity and the appropriate involvement of caregivers. Dresser critiques ADs based on Parfit's account of numeric personal identity, using the often-discussed case of a PLWD called Margo. She claims that dementia leads to a new manifestation of Margo emerging, which then contracts pneumonia.
View Article and Find Full Text PDFNature and Challenges of Transnational Family Caregiving: A Scoping Review.
J Evid Based Soc Work (2019)
January 2025
College of Social Work, University of Kentucky, Lexington, Kentucky, US.
Purpose: This scoping review explored the nature and challenges of transnational family caregiving. International migration and global aging have resulted in growing instances of transnational family caregiving, which involves providing care for older adults across national borders. However, little is known about the realities of such caregiving.
View Article and Find Full Text PDFAn Evaluation of Self-Assessed Caregiver Readiness to Foster and Adopt After Participating in the National Training and Development Curriculum.
J Evid Based Soc Work (2019)
January 2025
University of Washington School of Social Work, Seattle, WA, USA.
Purpose: The self-assessment is a component of the National Training and Development Curriculum (NTDC) used by resource (i.e. foster, adoptive, and kinship) parents to understand strengths and areas of potential growth associated with successful parenting.
View Article and Find Full Text PDFEffectiveness of Rehabilitation Intervention on Overactive Bladder After Spinal Aneurysmal Bone Cyst Surgery in A Child: A Case Report.
Cureus
December 2024
Rehabilitation, Hanoi Medical University, Hanoi, VNM.
Managing overactive bladder (OAB) in children is recommended to involve rehabilitation intervention including urotherapy, clean intermittent catheterization (CIC), and medication. However, there is scarce evidence on the management of OAB in children in Vietnam, as well as the effectiveness of combining urotherapy, CIC, and medication in managing this condition. We report a case of an 11-year-old female pediatric patient with OAB following aneurysmal bone cyst (ABC) surgery.
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